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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 15, 2025
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A MyLupusTeam Member

It sounds like neuropathy. I have that at various times and in various parts of my body. Mine is linked to my post-kidney transplant meds but I also have Lupus plus one or other autoimmune diseases that may be related to the neuropathy. I am on medication which has greatly reduced the symptoms, but like with all meds, does have risks.

August 15, 2025
MyLupusTeam

The stinging and biting sensations you're experiencing are likely due to peripheral neuropathy, which happens when lupus causes inflammation that damages the nervous system. This damage affects the protective coating around your nerves, causing them to send random signals that feel like stinging or biting even when nothing Show Full Answer

The stinging and biting sensations you're experiencing are likely due to peripheral neuropathy, which happens when lupus causes inflammation that damages the nervous system. This damage affects the protective coating around your nerves, causing them to send random signals that feel like stinging or biting even when nothing is actually touching your skin. Here are some steps you can take to manage these symptoms:

• Talk to your doctor about adjusting your lupus medications, as treating the underlying immune response is key
• Consider medications like prednisone that help reduce inflammation throughout the body
• Track when these sensations occur and what might trigger them
• Discuss with your healthcare team about getting additional testing to rule out other causes

Remember that these nervous system symptoms are often treatable. Working closely with your healthcare team to find the right treatment approach is essential.

August 15, 2025

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