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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 29, 2025
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A MyLupusTeam Member

I’m on hydroxychloraquine at 200 mg per day. I started at 400 mgs and was reduced to 200mg after approximately 6 months. I have annual checkups and thus far not a lot of change in vision. It’s concerning, but doing due diligence by faithful checkups yearly is my responsibility. Color me grateful ❤️🙏🦋

August 29, 2025
A MyLupusTeam Member

I have been on it since I was 26 and im 63 now. Ive never had anything with my eyes thank goodness.

August 29, 2025
A MyLupusTeam Member

I have been on HCQ for 4 years and 🙏no problems.

September 6, 2025
A MyLupusTeam Member

I’ve been on it for over 30 years so far I’ve had no problems.

September 2, 2025
A MyLupusTeam Member

I took Plaquenil on and off over a 25+ year period. And yes, I was taken off of it by my retinal specialist because of toxicity in my eye.

August 29, 2025

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