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What rheumatologists consider remission is generally a lack of active organ disease and labs that indicate the immune system activity and inflammation levels are decreased. Unfortunately, we often continue to have fatigue, joint pain, etc., even when in remission!
Also, if you're just recovering from a major organ flare, that can leave you feeling horrible for a long time. After my worst flare, it took almost three years to lose the flu-like feeling.
We have to continue to take excellent care of ourselves, remission or not, Elizabeth.😘
I hope you soon lose that awful feeling, Elizabeth--I know it well.💜🙏🏽
Oh thank you. Last hospital stay, I was in acute kidney failure which was only 6 months ago. So that does make sense.❤️
It's completely normal to have both good and bad days, even when approaching remission. Many MyLupusTeam members share that even during recovery, they can experience difficult days where rest is necessary. Having lupus means adjusting to a new normal, but that doesn't make the challenging days any easier.
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