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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 27, 2025
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A MyLupusTeam Member

have an appt

October 27, 2025
A MyLupusTeam Member

@A MyLupusTeam Member and everyone else--If your general ophthalmologist is unable to help with the double vision, dizziness, and other symptoms, they will usually refer you to a neuro-ophthalmologist, who specializes in these issues.

If they don't refer you, please ask them to do so.😘

October 28, 2025
A MyLupusTeam Member

I would ask to be tested( tilt table test) for POTS also syncope there are two postural orthostatic tachycardia syndrome , vasovagal or neurocardiogenic syncope

October 30, 2025
A MyLupusTeam Member

I too am struggling to read & see anything this morning, i feel like im seeing cross eyed its a little concerning today i am struggling a bit, I know im already considered legally blind But now i feel my eyes are crossing over,
I see a new ophthalmologist on Thursday, i just hope this ones not as bad as the last.
My last one was actually further away from me than this one. he would see me 2 hrs after my appt time, he would see everyone else who had appts After me then he only would see me for two min , i would almost miss my bus home! & they didn't care , theres no one that can fit my power chair in there car because it doesnt break down or fold So i cant afford to miss the trimet lift,

October 27, 2025
A MyLupusTeam Member

Yes Jeri please see an opthamologist or retina specialst(that's who I see). Your vision is not a wait and see situation.

October 27, 2025

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