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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
November 8, 2025
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A MyLupusTeam Member

In my case, and many visits to ER and a massive stroke. Therapists (speech, physical, cognitive, etc) , accepting that I disable. Rest when I feel tired as much as my body needs it as a precaution.

November 9, 2025
MyLupusTeam

How can you tell if you're in a flare when you have constant pain, and which condition is causing it with Mixed Connective Tissue Disease (MCTD)?

With MCTD, you have symptoms from multiple conditions at once—lupus, rheumatoid arthritis, myositis, and scleroderma—which makes it tricky to pinpoint what's happening. The Show Full Answer

How can you tell if you're in a flare when you have constant pain, and which condition is causing it with Mixed Connective Tissue Disease (MCTD)?

With MCTD, you have symptoms from multiple conditions at once—lupus, rheumatoid arthritis, myositis, and scleroderma—which makes it tricky to pinpoint what's happening. The overlapping nature means your baseline pain might already be higher than someone with lupus alone.

A flare typically means a noticeable increase in your usual symptoms. Even if you're always in pain, watch for:

- Pain that becomes more intense or spreads to new areas
- New or worsening rashes
- Increased fatigue that doesn't improve with rest
- Fever, headaches, or dizziness
- Mouth or nose sores

One MyLupusTeam member with MCTD shared that their doctor diagnosed them with "MCTD leaning toward lupus and rheumatoid arthritis" based on which symptoms were most prominent.

If you're having trouble distinguishing between your baseline and a flare, talk with your rheumatologist. They can help determine if your symptoms indicate that your MCTD isn't well controlled and whether your treatment plan needs adjustment. Sometimes blood work or imaging can provide objective measures of increased disease activity beyond what you're feeling.

November 8, 2025

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