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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is there anyone out there going through the same thing and how do you all deal with it?

And how often does it happen?Mine happen frequently

November 20, 2025
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MyLupusTeam

Is burning, tingling, and numbness in your tongue and face related to lupus?

Tingling and numbness are common sensations for people with lupus, though they typically occur in the arms, hands, legs, and feet. Some members have experienced these sensations in the face as well.

These symptoms can be caused by
- Peripheral Show Full Answer

Is burning, tingling, and numbness in your tongue and face related to lupus?

Tingling and numbness are common sensations for people with lupus, though they typically occur in the arms, hands, legs, and feet. Some members have experienced these sensations in the face as well.

These symptoms can be caused by:
- Peripheral neuropathy (nerve damage from lupus)
- Raynaud's phenomenon (reduced blood flow to extremities)
- Nutritional deficiencies (low zinc, vitamin B3, or B12)
- Sjögren's disease, which affects 23-35% of people with lupus and can cause dryness and altered sensations in the mouth

Your high iron levels may be contributing to your symptoms, but this needs evaluation from your doctor since it's not a typical lupus-related cause. What MyLupusTeam members experience:

A MyLupusTeam member shared: "I also have Raynaud's. Very often my hands hurt and my fingers get numb and tingle."

Another member mentioned experiencing burning sensations, saying "I feel like I'm literally on fire sometimes."

Frequency varies greatly among members - some experience these symptoms constantly for months, while others have episodes that come and go. Managing these symptoms:

It's important to track when your symptoms occur and discuss them with your doctor. They can determine if this is lupus-related, connected to your iron levels, or another condition requiring treatment.

If numbness and tingling are accompanied by weakness, slurred speech, vision changes, confusion, or loss of consciousness, seek emergency care immediately.

Your healthcare provider can help create a treatment plan tailored to your specific situation.

November 20, 2025

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