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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Alachua, Forida
December 27, 2025
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A MyLupusTeam Member

Alicia, we all get fatigue, but when it's extreme, you may be having a significant flare. Please see your doctor ASAP to ensure there's no organ flare occurring.

December 28, 2025
A MyLupusTeam Member

Yes l have been affected by extreme fatigue to where I sleep sometimes for 3 or 4 days at a time it's just something that I have gotten used to even though it sucks at times. It will pass allow your body to test. Get well soon 🙏🏿

December 27, 2025
A MyLupusTeam Member

Thank you, when I have fatigue I feel like I am about to pass out and the sides on my back hurts and I have to sit down. It's the only thing that helps.

December 27, 2025
MyLupusTeam

Is extreme fatigue affecting you?

Yes, extreme fatigue is incredibly common with lupus. Studies show that between 67 percent and 90 percent of people with lupus experience chronic fatigue. It's often reported as one of the most troubling symptoms.

This isn't just regular tiredness. Lupus fatigue is more severe and lasts Show Full Answer

Is extreme fatigue affecting you?

Yes, extreme fatigue is incredibly common with lupus. Studies show that between 67 percent and 90 percent of people with lupus experience chronic fatigue. It's often reported as one of the most troubling symptoms.

This isn't just regular tiredness. Lupus fatigue is more severe and lasts longer than general sleepiness. It can persist no matter how much rest you get and can affect you physically, mentally, and emotionally. It often worsens during flares.

Many people find that fatigue makes daily tasks like cooking, cleaning, or even walking up stairs difficult or impossible. A MyLupusTeam member shared their experience with extreme fatigue, describing feeling dizzy from exhaustion even after getting plenty of sleep. Several factors can contribute to lupus fatigue:

* Disease activity and inflammation
* Poor sleep quality or insomnia
* Pain from lupus
* Lack of physical activity
* Mental health challenges like depression and anxiety
* Brain fog
* Vitamin D deficiency
* Related conditions like fibromyalgia
* Certain medications

It's worth talking with your doctor about your fatigue, especially if it's severely impacting your quality of life. They can check for other causes like anemia or thyroid problems and help you find personalized ways to manage it.

December 27, 2025

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