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Hi, my name is Bonnie and I just got diagnosed. How have ya'll except the life that we have been given? Just new at this all.

A MyLupusTeam Member asked a question 💭
Morocco, IN
February 4
 · 
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A MyLupusTeam Member

Bonnie, I am about your age, and I have lived with lupus for 40 years now and enjoyed a good quality of life for most of that time. Rest assured: although some adaptation is necessary, you will find a new normal for yourself. You may want to check out my story, as I've written a lot about how I learned to accept the diagnosis. As a young person, I was in denial and didn't cope as well as I should have.

Please prioritize excellent self-care, including plenty of rest, UV protection, a healthy diet, and stress reduction.

February 7 (edited)
MyLupusTeam

How have others accepted life after a lupus diagnosis?

Accepting a lupus diagnosis is different for everyone, and it often feels like an emotional roller coaster. Many people go through stages similar to grief - from denial and fear to eventually finding acceptance and even relief at having answers.

Some common experiences Show Full Answer

How have others accepted life after a lupus diagnosis?

Accepting a lupus diagnosis is different for everyone, and it often feels like an emotional roller coaster. Many people go through stages similar to grief - from denial and fear to eventually finding acceptance and even relief at having answers.

Some common experiences include:

* Denial - feeling like part of your brain refuses to accept the diagnosis
* Fear and anxiety - worrying about the future, raising children, or becoming a burden
* Depression - grieving the loss of your "old life" or the life you imagined
* Relief - finally having an explanation for symptoms instead of feeling dismissed

The path isn't always linear. You might have days where you feel strong and capable, and other days where you feel hopeless. That's completely normal. What helps with acceptance?

Talking about your feelings is crucial. Many MyLupusTeam members recommend therapy or counseling to help process the diagnosis. Connecting with others who understand what you're going through can be incredibly validating.

Practical steps that help:

* Take it one day at a time
* Learn as much as you can about lupus
* Write down questions for your doctor
* Be patient with yourself - acceptance takes time
* Remember that this is your "new normal" and you'll discover strength you didn't know you had

Take a deep breath. It will be okay. You'll be scared at times, and that's normal. But you'll find your way through this.

February 4

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