Abruns, most people with lupus have mild disease and a normal life expectancy, so please don't panic! Stressing over our illness tends to make us worse, so anything that helps you relax, such as prayer, meditation, deep breathing, etc, is worth pursuing. Taking excellent care of yourself is important, including plenty of rest, UV protection, a healthy diet, and stress reduction.đź’ś
April 4
Great words to hear and just as applicable to those of us who've been diagnosed for years.
April 4
How can someone cope with the fear and uncertainty about the future with lupus?
The fear and uncertainty you're feeling are completely valid and shared by many others with lupus. A MyLupusTeam member expressed similar feelings: "I am so scared that I won't get a chance to raise my kids, or that I'll become a burden to them Show Full Answer
How can someone cope with the fear and uncertainty about the future with lupus?
The fear and uncertainty you're feeling are completely valid and shared by many others with lupus. A MyLupusTeam member expressed similar feelings: "I am so scared that I won't get a chance to raise my kids, or that I'll become a burden to them and my husband. The uncertainty is terrifying, and can almost be paralyzing."
It's important to know that while lupus is unpredictable day-to-day, many people live full lives with the condition. The uncertainty about symptoms doesn't mean your time is limited—it means learning to navigate the ups and downs.
Here are some ways others have found helpful:
- Take it one day at a time rather than worrying about the distant future
- Talk about your feelings with a therapist or counselor
- Connect with others who understand what you're going through
- Focus on what you can control, like following your treatment plan
- Write down questions and concerns to discuss with your doctor
A MyLupusTeam member shared: "It can be very scary when you first get the diagnosis. Just take a day at a time, read everything you can find on lupus and write down all your questions for your doctor."
The emotional weight of lupus is real, and getting support for these feelings is just as important as treating the physical symptoms.
April 3
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