Hi Mary, your slight red rash on your face looks how mine does at times. I have lupus with negative Ana which is not common but they know I have lupus. Also was diagnosed with discoid lupus through a biopsy many years ago.
April 15
Should you seek a second opinion if you feel your lupus symptoms aren't being addressed?
Yes, getting a second or third opinion is absolutely reasonable when you feel your concerns are being dismissed. This is especially important when you have symptoms that aren't being fully explained or addressed by your current doctor.
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Should you seek a second opinion if you feel your lupus symptoms aren't being addressed?
Yes, getting a second or third opinion is absolutely reasonable when you feel your concerns are being dismissed. This is especially important when you have symptoms that aren't being fully explained or addressed by your current doctor.
A red face can be related to lupus in several ways:
- Malar (butterfly) rash across the cheeks and nose
- Inflammation from lupus activity
- Photosensitivity (reaction to UV light)
- Early sign of a lupus flare
Some people experience facial warmth and redness without a visible rash, while others have clear discoloration. It's worth noting that lupus rashes can look like other skin conditions, so seeing a dermatologist who understands lupus can be helpful. A skin biopsy might be recommended to confirm what's causing your facial redness.
When seeking another opinion, consider:
- Bringing a family member or friend to appointments as a witness
- Using your patient portal or app to document your symptoms in writing
- Asking specifically what needs to happen for a lupus diagnosis
- Finding a rheumatologist who understands the connection between antiphospholipid syndrome and lupus
Your healthcare team should work to help you feel better even while determining your exact diagnosis.
April 13
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