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I was just diagnosed at the beginning of the month and have started on Hydroxychloroquine for almost 3 weeks. I have terrible joints pain including hips and tailbone. Plus the fatigue. Any advice for keeping up on this trip?
Thanks!!

April 20
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MyLupusTeam

How can you manage a week-long field trip with joint pain and fatigue while newly diagnosed with lupus?

Congratulations on planning this special trip with your son! Since you're only three weeks into hydroxychloroquine treatment, it's important to know that it typically takes several weeks to months to feel the full Show Full Answer

How can you manage a week-long field trip with joint pain and fatigue while newly diagnosed with lupus?

Congratulations on planning this special trip with your son! Since you're only three weeks into hydroxychloroquine treatment, it's important to know that it typically takes several weeks to months to feel the full benefits, so you may still be experiencing significant symptoms.

Here are some practical tips for managing your trip:

Pace Yourself
- Build in rest breaks throughout each day
- Consider taking short 20-minute naps when possible to recharge
- Don't feel pressured to do every single activity

Manage Joint Pain
- Bring any pain medications your doctor has prescribed
- Use supportive shoes with good cushioning for your hips and tailbone
- Consider bringing a small cushion for sitting during tours or bus rides

Combat Fatigue
- Stick to your medication schedule - take hydroxychloroquine consistently
- Stay hydrated and eat regular meals
- Avoid caffeine after early afternoon if it might interfere with nighttime rest

Communicate Your Needs
- Let trip organizers know you may need to sit out some activities
- Don't push through severe pain or exhaustion - listen to your body

Since you're newly diagnosed, talk with your doctor before the trip about managing symptoms and whether you need any adjustments to your treatment plan.

April 20
A MyLupusTeam Member

Try doing some light stretches for your tale bone. There should be some good ones on YouTube. Yoga has helped me a lot.
I stretch my back by doing the child pose. Sitting on your knees and then stretching forward on the floor is amazing for me.
Even Tai Chi helps because it's slow moving.
Have a great time!!

April 20

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