Do you experience extreme fatigue that causes you to sleep for extended periods, like 36 hours at a time every few months?
Extreme fatigue is incredibly common with lupus, though sleeping for 36 hours straight is on the more severe end of the spectrum. Many MyLupusTeam members describe overwhelming exhaustion that Show Full Answer
Do you experience extreme fatigue that causes you to sleep for extended periods, like 36 hours at a time every few months?
Extreme fatigue is incredibly common with lupus, though sleeping for 36 hours straight is on the more severe end of the spectrum. Many MyLupusTeam members describe overwhelming exhaustion that significantly impacts their daily lives.
One member shared: "I've been tired before it, and I'm tired now... just lupus!" Another described feeling extreme fatigue set in predictably during daily activities, saying "I am TI--erd" became a regular refrain.
What might be contributing to this level of fatigue:
* Active lupus disease itself
* Medications like mycophenolate mofetil or duloxetine
* Sleep disorders or insomnia that prevent restful sleep
* Anemia or other complications
* Fibromyalgia, which often occurs alongside lupus
It's really important to talk with your rheumatologist about this pattern. Sleeping for 36 hours at a time suggests something needs attention - whether it's adjusting medications, treating a sleep disorder, or addressing underlying disease activity.
Your doctor might refer you to a sleep specialist or adjust your treatment plan. This level of fatigue shouldn't be something you just push through alone.
April 21
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