The most important thing is ensuring your dose isn't too high and keeping up with regular eye exams (ophthalmologist, not optometrist). The maximum safe dose for our retina is 5 mg/kg daily, so to take 400 mg a day, one must weigh 176 lbs or more.
PLQ can rarely cause heart issues, so it's reasonable to have your doctor check for it with a yearly EKG, though it's not strictly recommended.
April 24
Having been on Plaquenil since 2006 without major issues is actually a really good sign! If serious side effects or allergic reactions were going to happen, they typically show up much earlier — not nearly two decades in.
That said, it's always smart to stay informed. Here are a few things worth keeping in mind:
- Eye Show Full Answer
Having been on Plaquenil since 2006 without major issues is actually a really good sign! If serious side effects or allergic reactions were going to happen, they typically show up much earlier — not nearly two decades in.
That said, it's always smart to stay informed. Here are a few things worth keeping in mind:
- Eye checkups — Long-term use can rarely affect vision, so regular eye exams are recommended
- Report new symptoms — If anything feels different, like nausea, rashes, or changes in vision, let your rheumatologist know
- Don't stop suddenly — Stopping Plaquenil abruptly can trigger a lupus flare, so never discontinue without talking to your doctor first
- Generic vs. brand name — Some people notice differences in side effects if their pharmacy switches between brand-name Plaquenil and generic hydroxychloroquine The fact that Plaquenil helps slow the autoimmune activity in lupus makes it a really valuable medication. The benefits often outweigh the risks for most people — especially long-term users like yourself.
A conversation with your rheumatologist about any specific concerns is always the best move. They know your history and can give the most personalized guidance.
April 23
Join
Your Privacy Choices
