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My eGFR keeps declining. My doctor is sending me to a specialist. How does this affect us lupies. Can someone tell what their experience was/is. I am scared, I guess because Ive never dealt with anything this bad before I worry about my adult son, we just lost his father on Christmas Eve.
Lisa, I have also had a decline in my GFR over my 35 years with lupus nephritis, but it has been slow. The measures we can take to preserve our kidney function include drinking plenty of water, avoiding salt, avoiding over-the-counter meds without first double-checking with your doctor (especially NSAIDs), and keeping our BP controlled. Ideally, a BP under 120/80 helps preserve kidney function. ACE and ARB medications also help preserve it. The progression of kidney disease is highly variable and depends on the stage, too.
There are very effective meds to treat lupus nephritis, so try not to panic. Worst case scenario, even with advanced kidney failure, dialysis and transplant are options that compensate for the kidney failure. Take care, and keep us posted.😘
I took a huge dive in a matter of 2 weeks. I had not been eating and did not drink the needed water. To offset my thirst I drank diet squirt. Big mistake! Ended up in hospital in serious dehydration. I also had food repulsion. My egfr went from the nineties down
to kidney failure gfr was six. I survived and worked with a kidney dietician to regain my health back.I cringe every time I look back at my diagnosis. I was blessed to return to a safe gfr and am still adhering to water and
Kidney safe foods.Ask to meet with a kidney dietician. Bless you.
First, it's completely understandable to feel scared, especially while carrying the grief of losing someone so recently. That's a lot to hold at once — for both you and your son. You don't have to have it all figured out right now.
A declining eGFR means the kidneys are filtering less efficiently over time. In lupus, this is Show Full Answer
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