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raised up I was extremely dizzy and could hardly walk. Since then I have had some dizziness especially when looking up or when laying flat down and getting up from laying down. I’m getting discouraged friends. It is literally something different to deal with every few days. Anyone else experienced a sudden onslaught of dizziness? How to get rid of this? I feel like I am having a flare to of my autoimmune symptoms. Taking a low dose prednisone for my back pain.

May 1
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Answer Summary

Members came together around a question about sudden dizziness, sharing that many experience similar symptoms triggered by position changes,... Read more

Members came together around a question about sudden dizziness, sharing that many experience similar symptoms triggered by position changes, and the most common advice was to move slowly when getting up or bending over. Several members described possible causes including inner ear vertigo, low blood pressure, allergies, autoimmune-related eye inflammation, and dehydration, with practical tips like staying hydrated, trying vestibular exercises, and taking motion sickness medication. A recurring emotional theme was encouragement to see a doctor or rheumatologist, along with warm reassurance that no one is facing these challenges alone.

A MyLupusTeam Member

It could be low blood pressure or something going on with your innerear(s) causing a vertigo sensation. My mother has sclerosis and has BPPV, and can no longer have the dentist lay her back too far or have her hair washed at a beauty parlor. There are several different issues just with the ears that can cause dizziness, some are even caused by autoimmune issues.

May 4
A MyLupusTeam Member

Frankie, please see your rheum, since you're flaring.

What you're describing with dizziness brought on by head position changes is classic for inner ear vertigo, and I also experience it at times. A possible trigger is allergies, as sinus fullness can transmit pressure to the inner ear, causing this. We're in allergy season, so something like Allegra may help relieve the symptoms, as it does for me. You may not notice any major allergy symptoms for this to occur. It could be lupus-related, too. Many people--including the healthy--develop inner ear sensitivity with age, so this vertigo tends to be more of a problem.

There's a simple exercise that helps relieve inner ear vertigo, and it involves sitting down and making the head movement that brings on the symptoms. Then wait for it to pass and repeat it 5-10 times, a few times daily. This causes the inner ear receptors to adapt, so the sensation decreases. It's like being around a bad or good smell for a while (such as pet smells) — you stop noticing it because your smell receptors adapt to it. I've seen it work for many patients.

May 1
A MyLupusTeam Member

I have learned my lesson having too many falls when I quickly move in any direction. Slow is the way to go :-)

May 1
A MyLupusTeam Member

I have to rise slowly in the morning and not make a sudden upward thrust from laying down all night. I allow myself about 30 seconds for my blood to get to my brain. Then all is good.

May 1
MyLupusTeam

First of all, that sounds really frustrating and exhausting — and you're definitely not alone in feeling like lupus keeps throwing new curveballs. Many MyLupusTeam members have shared similar experiences with sudden dizziness.

The dizziness you're describing — especially when changing positions like lying down or looking up Show Full Answer

First of all, that sounds really frustrating and exhausting — and you're definitely not alone in feeling like lupus keeps throwing new curveballs. Many MyLupusTeam members have shared similar experiences with sudden dizziness.

The dizziness you're describing — especially when changing positions like lying down or looking up — could have a few possible causes worth knowing about:

- Orthostatic hypotension — a sudden drop in blood pressure when changing positions, which is more common in people with lupus
- Prednisone side effects — even low doses can affect blood pressure and fluid balance
- Dehydration — which can trigger dizziness and headaches, and is easy to overlook
- Lupus-related inflammation affecting blood vessels A few things that may help in the short term:

- Rise slowly from lying or sitting positions — give your body a moment to adjust
- Stay well hydrated throughout the day
- Let your doctor know right away, especially since you're on prednisone and experiencing a possible flare

This really is worth a call to your care team soon. Tracking when the dizziness happens, how long it lasts, and what you were doing can help your doctor pinpoint the cause faster. Hang in there — you're handling a lot, and reaching out for support is exactly the right move. 💙

May 1

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