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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Hartford, CT
May 4
 · 
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A MyLupusTeam Member

Excellent self-care can help prevent this, Sue, and hopefully, you will remain stable.

May 5
A MyLupusTeam Member

Yes, it is indeed possible

May 4
MyLupusTeam

Yes, this does happen — and it's more common than many people realize. Research suggests that up to 42% of people with cutaneous lupus may eventually develop systemic lupus erythematosus (SLE). That said, it doesn't happen to everyone, and many people with cutaneous lupus never progress to SLE. The risk of progression can Show Full Answer

Yes, this does happen — and it's more common than many people realize. Research suggests that up to 42% of people with cutaneous lupus may eventually develop systemic lupus erythematosus (SLE). That said, it doesn't happen to everyone, and many people with cutaneous lupus never progress to SLE. The risk of progression can vary depending on the type of cutaneous lupus:

- Discoid lupus (chronic cutaneous) — When lesions are limited to the head and neck, the likelihood of developing SLE is lower
- Subacute cutaneous lupus — People with this type don't usually develop severe systemic disease, though joint pain and stiffness are common
- Acute cutaneous lupus — This type, which includes the butterfly rash, is also commonly seen in people who already have SLE

Because lupus can sometimes cause silent damage in other parts of the body without obvious symptoms, regular check-ups are really important — even if things seem fine on the surface. Keeping up with a rheumatologist and dermatologist, and reporting any new or changing symptoms promptly, is the best way to catch any progression early and adjust treatment if needed.

May 4
A MyLupusTeam Member

Thank you, Niranjana❤️

May 5

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