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I was diagnosed with SLE 20 years ago. Not taking any medication right now.

May 18
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MyLupusTeam

That sounds really frightening, and it's completely understandable to want answers. What's being described β€” one-sided facial drooping that resolves within a week during flares β€” is something that can happen with lupus, particularly with neuropsychiatric lupus (NPSLE), which affects the brain and nervous system.

NPSLE Show Full Answer

That sounds really frightening, and it's completely understandable to want answers. What's being described β€” one-sided facial drooping that resolves within a week during flares β€” is something that can happen with lupus, particularly with neuropsychiatric lupus (NPSLE), which affects the brain and nervous system.

NPSLE affects about two-thirds of people with SLE and can cause a range of neurological symptoms, including ones that mimic stroke-like episodes. That said, this is a symptom that needs urgent medical attention every time it happens. Here's why it's so important to get evaluated:

- Stroke can cause sudden one-sided facial drooping, numbness, weakness, and vision problems β€” and requires emergency care
- Lupus-related inflammation in the brain or autoantibodies can trigger neurological symptoms that look similar
- Blood clots, which are a known comorbidity of SLE, can also cause stroke-like episodes

Being off medication right now is worth discussing seriously with a rheumatologist, especially given these symptoms. Unmanaged lupus activity during flares can increase the risk of serious neurological events.

Please don't wait β€” reach out to a doctor as soon as possible, and if facial drooping happens again, treat it as an emergency.

May 18

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