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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question πŸ’­
Stonewall, OK

Some strange spots popped up inside of my butterfly rash. They hurt, and itch.

May 23
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A MyLupusTeam Member

Hope you find answers soon πŸ’œ I didn't know I've been experiencing the malar rashes until I saw others photos. Whole time I thought oh the sun burned me smh..

May 24
MyLupusTeam

It sounds like something new and unexpected is going on β€” can you share a bit more about what you're experiencing? For example, is it a sensation like crawling, tingling, electric shocks, or something else?

That said, lupus can cause a surprising range of unusual sensations that might feel completely foreign at first. Here Show Full Answer

It sounds like something new and unexpected is going on β€” can you share a bit more about what you're experiencing? For example, is it a sensation like crawling, tingling, electric shocks, or something else?

That said, lupus can cause a surprising range of unusual sensations that might feel completely foreign at first. Here are some commonly reported ones:

- Crawling or creeping feeling on the skin or scalp
- Electric shock or zapping sensations in the arms, legs, face, or other areas
- Pins and needles or stinging feelings
- Muscle twitching or spasms
- Flushing, buzzing, or vibrating sensations

Many of these can be linked to peripheral neuropathy, where lupus-related inflammation affects the nerves. Others may be connected to flares, sun exposure, hair loss, or even medication side effects.

A MyLupusTeam member described it as feeling like *"bugs crawling under my skin"* β€” so know that whatever you're feeling, others have likely experienced something similar.

If the sensation is new, persistent, worsening, or comes with visible skin changes, it's worth reaching out to your doctor. It's always better to get it checked out, especially when something feels unfamiliar! πŸ’™

May 23

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