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I kept grabbing my head almost every few min ,all during bingo & dinner. I was asked several
Times if i had a headache? I would say No because i dont
But my head does feel very funny & light headed im lying in bed now now if i do any movement of my head or neck i get this weird sensation. It hurts i keep yelling out “Owe & Stop it” don't know who I'm talking to
I do see me Rheumatologist in the morning. . Has any one ever felt anything like this or had anything like it ? It really weird… read more

May 28
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MyLupusTeam

First — yelling "Owe & Stop it" at nobody is completely valid. These sensations are genuinely startling and painful, and you are absolutely not alone in experiencing something like this with lupus.

What you're describing — sharp, pulse-like shock sensations at your temple, lightheadedness, and sensations triggered by head or Show Full Answer

First — yelling "Owe & Stop it" at nobody is completely valid. These sensations are genuinely startling and painful, and you are absolutely not alone in experiencing something like this with lupus.

What you're describing — sharp, pulse-like shock sensations at your temple, lightheadedness, and sensations triggered by head or neck movement — could be related to how lupus affects your nervous system. Lupus can cause inflammation that impacts nerves, leading to electric shock-like feelings, pins and needles, or sharp zapping sensations. The good news is you're seeing your rheumatologist in the morning — perfect timing. Here's how to describe it clearly so they understand:

- Location: Right temple, spreading to head/neck
- Type of sensation: Sharp, pulse-like, electric shock feeling
- Frequency: Every few minutes for several hours
- Triggers: Head or neck movement makes it worse
- Other symptoms: Lightheadedness, head feels "funny"
- What it's NOT: Not a typical headache

Writing this down tonight before your appointment would really help.

If symptoms get significantly worse overnight — especially if you feel confused, have vision changes, or the pain becomes severe — please seek emergency care rather than waiting until morning.

May 28
A MyLupusTeam Member

@A MyLupusTeam Member my Rheumatologist didnt have time to go over anything i had on my shortlist. That was #1 on my list. So she didnt listen to anything else I tried bringing up . She only discussed what I needed to do with my medications for the surgery basically when to stop my mycophenolate & when to restart it again. & whst to fo with my prednisone & how much i should be takeing .before & after my surgery & when to go back to my regular dose,
Ive already had shingles 2 years ago, & then got the vaccine shortly after. So I should be well protected and not get it agsin. I havent seen a rash or sores on me like the last time . Besides i cant afford to get this again especially not now im haveing surgery 2 weeks from today. I still feel the sensation a bit today not as bad .im just getting dizzy today to the point i kept falling over when I stoodup. However the last time I got wad during the concert my son took ms to 2 yrs ago for mothers day. . If i i do it again he’ll stop taking me to these concerts around mothers day.
I guessk better pray thats not it
Thank for the help i really appriciated it I guess ill pray that not it
Gof bless you my friend & have a good weekend

May 29
A MyLupusTeam Member

Teresa, it may be the beginning of a shingles attack, among other possibilities. You're describing it fine; just tell your rheumatologist about it and keep us posted, please. Hugs to you.

May 29 (edited)
A MyLupusTeam Member

I have this sensation at bottom of skull and triggers pain. I have neck problems and pinched nerves.

May 28

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