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A MyLupusTeam Member asked a question 💭
Omaha, NE

I am asking because my infusion nurse was grilling me today about disability and why wasn't I on it? I replied, "because their are many more people who need it more than me." She then said I should file, as all of my conditions would qualify me and that I should not be so prideful about it. I was taken aback and not sure how to take that
I don't view it as prideful. I know there may come a day when I will need disability but I figure as long as I can get up everyday and be somewhat functional… read more

June 10
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Answer Summary

Members shared deeply personal stories about when they knew it was time to file for disability, with many noting they waited until they could... Read more

Members shared deeply personal stories about when they knew it was time to file for disability, with many noting they waited until they could no longer safely perform their jobs due to lupus symptoms like extreme fatigue, memory issues, seizures, or kidney failure. A recurring theme was that the process is rarely easy, with most members being denied at least once, and many strongly encouraged hiring a disability attorney to improve chances of approval. Several members offered practical advice, including applying sooner rather than later, seeking help from a Social Security disability lawyer, and looking up tips on YouTube to better prepare for hearings.

A MyLupusTeam Member

To all who are filing for disability, there are several disability attorneys on YouTube sharing advice about completing forms and what to say to the judge if you have to see one. Google "disability tips on YouTube". This will help you decide if you need to hire an attorney.

June 15
A MyLupusTeam Member

My name Is Katherine and I'm 36 ysr old, u started getting fired of several JONS because of my appointments AND the days i couldn't go go work that wasn't helping at all. i file for disability 3 times and they told me 2 times i can adapt to another job but on the 3rd Time i got a disability lawyer and he helped me to get my disability, they focus on several conditions so i suggest you fing a disability lawyer, wish you good vibes and hope you have your disability aprove.🙏🌻🌞

June 14 (edited)
A MyLupusTeam Member

It took me 3 years to get disability because I was in my 30's. I finally hired a disability attorney (many will do it on a contingency basis) and come to find out, Social Security was denying me because I had so many medical records that they didn't want to mess with them. My attorney went to the Social Security Office and found 16 boxes of medical records stuffed in a closet. I had a court date within the month. After the Federal Disability Judge read through my records, he wouldn't even let the SS attorney talk. He asked me to tell him my story. I did and he not only granted disability but he gave me retro pay for the 3 years it took to get it. Persistence pays off. Don't give up filing no matter what.

June 13
A MyLupusTeam Member

I think you should be able to get disability right away cuz you don't know from day to day how you're going to feel.

June 25
A MyLupusTeam Member

I worked 35 years for University of Florida. My last two years was rough but I made it. My supervisor and co-workers knew my condition and were very supportive. I was 57 when I retired and was only going to get retirement benefits. I retired the end of June 2019 and applied for disability in July. I did all the paperwork except what the doctors had to fill out. I was approved for disability in December 2019 and started receiving SSA disability benefits in January 2020. I'm grateful to God that I didn't have to get a lawyer. All things work together for those who love God!

June 23

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