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My original appt was June 1, waited for 3 months to get it. It was postponed to June 29 because the lab lost my bloodwork They postponed that appt because they are remodeling. They wanted to do a video appt, but I'm a new patient and need to be seen in person, so now it is postponed to July 16. I have been waiting since March for an appt. My kidneys hurt and I am tired of the wait. I'm going to a different location this first time, then go to the one getting remodeled.
Yes, this waiting is very frustraing. I remember waiting to see my Rheumatologist and the Lung doctor. I tried to do things to be healthy like eating right and doing my deep breathing exercises, no stress (giving it over to God), and staying out of the sun. I also started taking my vital signs every day and checking my urine for protien so I would know where I stood during an acute phase. I advocated for myself like you did in getting a better appointments. I had my list of questions (I often asked my lupus team the questions) then asked the doctor. I focused on what I could do to help me so I did not feel helpless and this took a lot of the stress and worry off of me as I watched my diet more closely as I was writing it down what I ate and check my vital signs so I could make adjustments and I prayed a whole bunch too. I prayed without ceasing and God helped me. I am praying for you Lisa and I know you can do this. God bless.
That is genuinely frustrating, and the concern is completely valid. Waiting since March while dealing with kidney pain is a lot to carry — and the repeated delays make it even harder.
Going to a different location for the July 16 appointment is a smart move. Getting seen in person as a new patient is important, especially Show Full Answer
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