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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question πŸ’­
Palm Bay, FL
July 4
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A MyLupusTeam Member

I get headaches all the time sometimes I wake up with one just one more thing thank you lupus

July 5
A MyLupusTeam Member

Thank you @A MyLupusTeam Member
The last hospital visit I was diagnosed with swelling of the brain from my neurologist. My brain is just a bit to fat in my skull due to (Predisone/weight gain) I've been working on that since May, but it's hard to get the glp they recommended me to start and my insurance is just a fly in the wall with empty pockets saying ("nope can't approve that") though I haven't tug a war with my rheumatologist yet about it all my research and lupus teams questions with ai support all point to this love phrase (Lupus Cerebritis) from my light sensitivity to my ears, nose and jaw..the tension from my migraine is just uncomfortable. The relief is only for just a short while before the waves roll back in one again. But I'm trying to work on it. πŸ’œ

July 5
A MyLupusTeam Member

Are they calling it benign intracranial hypertension or pseudotumor cerebri? If so, it's worth asking about acetazolamide (Diamox), which treats that, as does weight loss. If not and you're concerned about possible cerebritis, please discuss it with the neurologist and consider a second opinion at the closest university medical center, Camille. Good luck, and keep us posted!🌹

July 5
A MyLupusTeam Member

Yes, it's possible but not necessarily the problem, as it's very uncommon. Please see my answer to your other question, Camille.

July 5
MyLupusTeam

Yes, brain inflammation related to lupus can contribute to headaches and migraines. When lupus causes inflammation in the brain β€” sometimes called lupus cerebritis β€” it can trigger a range of neurological symptoms, including headaches. Migraines are actually quite common with lupus, affecting around 20 percent of people Show Full Answer

Yes, brain inflammation related to lupus can contribute to headaches and migraines. When lupus causes inflammation in the brain β€” sometimes called lupus cerebritis β€” it can trigger a range of neurological symptoms, including headaches. Migraines are actually quite common with lupus, affecting around 20 percent of people with the condition. For some, migraine can be a direct part of the disease itself rather than just a coincidental symptom.

Some lupus-related factors that can contribute to migraines include:

- Brain inflammation caused by lupus activity
- Problems with blood flow in the brain
- A weakened blood-brain barrier allowing harmful substances to enter
- Anemia, which is common in lupus
- Sleep disturbances
- Stress and mental health challenges like anxiety or depression

It's worth keeping track of migraine patterns and discussing them with a rheumatologist or neurologist. Treatments like Botox injections have been used by some people with lupus for chronic migraines, though they do come with potential side effects to be aware of.

July 4

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