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I recently went to the hospital due to a terrible cognitive dysfunction spell where I couldn't function to walk, process thoughts from questions, or speak. My neurologist in the hospital explained that my Brain is "Swollen" in my skull and it's taking on pressure due to weight gain from my Prednisone and it's actually adding weight to not just my body but my brain too. Which is causing me to suffer for intense to serve brain Fog, migraines and it's effecting my hearing and sight too… read more
Camille, this is manageable, so please stay as calm as possible, though it's frightening. Sending you hugs and blessings.😘🌹
That sounds absolutely terrifying, and it's completely understandable to feel overwhelmed right now. 😟 What you experienced is serious, and it's really good that you got to the hospital when you did.
Yes, lupus can absolutely affect the brain in multiple ways. Here's a breakdown:
Ways lupus can impact the brain and nervous Show Full Answer
Wow I had no idea GLP-1’s were being applied in this manner. I have a friend that gets CSF leaks. When she has a blood patch to stop it she gets rebound intracranial hypertension and a whole host of awful symptoms. I think they had her on a GLP-1 for it but the weight loss did an already slender person was too much and she had to stop.
I’d encourage you to educate yourself on side effects. There are the typical ones you’ll find and there are the ones you won’t see mentioned as often, Glp-1 face, -1 hair loss/alopecia, telogen effluvium, accelerated androgenetic alopecia.
Important to be prepared and to educate your doctors. We know they can be dismissive so print good articles and take them to your appointment. People with autoimmune illness may be more susceptible. If you get alopecia there may be ways to mitigate it while on the meds and you can plan for this. And for cute scarves, hats, toppers or wigs. Eufora Conceal can help disguise this areas.
I had telogen effluvium start last September from an antifungal. Lordy I lost more than 500 hairs daily for months. Eight months later my regrowth is 2-3” long. Lol it sticks up all over but I’m just happy it’s coming back.
Hope this is helpful.
@A MyLupusTeam Member I had lupus cerebritis my first year with lupus also. I will have to look back at my records to see if swelling was indeed a part of my symptoms. Unfortunately, I was too ill to remember much of that year. I got through it, and so will you. We are so much stronger together. Good night. 💜😴
@A MyLupusTeam Member Hello my dear! Thank you so much for the well wishes too. This month makes my first year since I was diagnosed and I'm comfortable to understand my lupus has been heavily developing affecting my brain "Lupus Cerebritis " seems to be my new name in everything I hear and discuss with doctors and read through secure sources and books. But fingers crossed that I'll get it smoothed out.. now I'm officially a "Big head" have to make some laughter out of my chronicles of Lupus. Oh goodness I didn't know I've been gone so long but I will immediately go and find your email thank you so much my empowering friend 💜🎶
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