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A MyLupusTeam Member asked a question πŸ’­

I'm on hydroxychloroquine and have read that it can cause ringing of the ear. I've had pulsating tinnitus (I hear my heartbeat in left ear - mostly when it's quiet) for over 1 1/2 years now. MRI clear and neurologist have advised me that pulsating tinnitus usually last 3 months but mine hasn't stopped. Is this also cause by SLE?

July 20
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MyLupusTeam

That's a really frustrating experience, especially when it's been going on for so long with no clear answers. To clarify the difference: regular tinnitus is a constant ringing or buzzing sound, while pulsatile tinnitus is that rhythmic "whooshing" that pulses in sync with your heartbeat β€” which is exactly what you're Show Full Answer

That's a really frustrating experience, especially when it's been going on for so long with no clear answers. To clarify the difference: regular tinnitus is a constant ringing or buzzing sound, while pulsatile tinnitus is that rhythmic "whooshing" that pulses in sync with your heartbeat β€” which is exactly what you're describing. Pulsatile tinnitus can indeed be connected to lupus. Here are some lupus-related factors that may contribute to it:

- High blood pressure β€” About half of people with lupus have high blood pressure, which can trigger pulsatile tinnitus
- Vascular changes β€” Lupus can affect veins and arteries, which is a known cause of pulsatile tinnitus
- Orthostatic hypotension β€” Sudden blood pressure drops, more common in lupus, can cause related head sensations As for hydroxychloroquine, it's more commonly associated with changes in heart rhythm rather than pulsatile tinnitus specifically. If you ever notice a fast heartbeat or chest "thumping" alongside your ear symptoms, that's worth flagging to your doctor promptly.

Given that your symptoms have lasted well beyond the typical 3-month window, it's worth revisiting this with your rheumatologist, who can look at it through a lupus lens and explore whether your blood pressure or vascular health may be playing a role.

July 20

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