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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
July 25
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A MyLupusTeam Member

That is the worst; you don't want it to be anything but you also dont want it to be all in your head 😏

July 25
A MyLupusTeam Member

I have been to the hospital and had full heart work up - stress echo, cardiac ct, etc. Nothing to report.

July 25
MyLupusTeam

That sounds really exhausting and unsettling β€” and it makes complete sense to feel discouraged. What's being described could be related to a few things that are more common in people with lupus.

One possibility is orthostatic hypotension, where blood pressure drops suddenly, causing dizziness, weakness, and that pounding Show Full Answer

That sounds really exhausting and unsettling β€” and it makes complete sense to feel discouraged. What's being described could be related to a few things that are more common in people with lupus.

One possibility is orthostatic hypotension, where blood pressure drops suddenly, causing dizziness, weakness, and that pounding feeling β€” especially after standing. Lupus medications can sometimes contribute to this.

Another possibility worth mentioning to a doctor is atherosclerosis, where inflammation from lupus can affect blood vessels over time, making blood flow more forceful and causing a pounding or throbbing sensation.

Dehydration and anemia are also common in lupus and can cause similar symptoms like weakness and a pounding feeling. It's really important to seek immediate medical attention if any of these occur alongside the pounding:

- Sudden shortness of breath
- Chest pain, tightness, or pressure
- Passing out

As one MyLupusTeam member shared, going to the ER and being told everything is fine is far better than not going and wondering.

Please do bring these symptoms to a doctor or rheumatologist soon β€” tracking when they happen, how long they last, and any triggers will really help them figure out what's going on. You deserve answers and relief. πŸ’™

July 25

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