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I waa refitted for sclera lenses on yesterdayand not only are my eyes sore but my entire body feels like one huge sore about to ooze...😭😭😭😭
That sounds absolutely miserable, and it makes complete sense to feel overwhelmed right now. 💙
When hydroxychloroquine (Plaquenil) is stopped, lupus symptoms can flare up because the medication was actively working to slow down the autoimmune activity causing inflammation throughout your body. Without it, that protection is Show Full Answer
Something to keep in mind is that anything that stresses your body (like a medical procedure, small injury, sunburn, etc can cause a systemic flare up and make you feel miserable. Also anything that causes mental stress (like dealing with medical appointments, going to the dentist) can also cause a systemic flare up and make you feel miserable. As much as possible I really try to group as many appointments as I can into a single week because I know I’m going to feel miserable so I like to get it all done at once! The only real remedy is rest, a dark cool room, and maybe an Epsom salt bath. I hope you feel better soon. A side note whenever I attend at a drs office I keep my face covered and when they leave you sitting in an exam room for however many minutes before the dr arrives turn the lights off. The more you can limit your exposure to light the less miserable you will feel. Take care.
May I ask why you were taken off of Plaquenile, was it due to your vision? What do they have you on now?
I never thought of an Epsom salt bath! I am going to try this. 👍
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