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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Considering hip replacement surgery, I have SLE, DDD and fibromyalgia. Those who had surgery, what was it like for you?

A MyLupusTeam Member asked a question 💭
August 3
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A MyLupusTeam Member

My 8-week hip replacement recovery was smooth back in 2007. I opted to have in-home physical therapy. My therapist was persistent and wouldn't release me until she saw me independently get off the elevator of the building I lived in at the time. It was best for me to get my surgery done in the Spring so that I could start walking outside with my cane. Please let me know if you have any other concerns.💜

August 3 (edited)
MyLupusTeam

Hip replacement surgery is a big decision, especially when living with SLE. Here's what's important to know going in:

Having lupus adds extra layers of consideration for any surgery. Your surgical team needs to be fully aware of your SLE, all medications (especially steroids like prednisone), and any supplements you take.

Show Full Answer

Hip replacement surgery is a big decision, especially when living with SLE. Here's what's important to know going in:

Having lupus adds extra layers of consideration for any surgery. Your surgical team needs to be fully aware of your SLE, all medications (especially steroids like prednisone), and any supplements you take.

Some key risks to discuss with your doctors include:

- Lupus flares — the physical stress of surgery can trigger one
- Blood clotting — SLE raises the risk of antiphospholipid syndrome, which increases clotting likelihood
- Infection and bleeding — standard surgical risks that may be compounded by lupus medications
- Medication changes — some lupus treatments may need to be paused before surgery

It's really important that both your rheumatologist and surgeon are in close communication before, during, and after the procedure.

A MyLupusTeam member shared, *"Prednisone destroyed my hips. I've had three surgeries in seven years."* Another described hip pain as feeling like being crushed at times — so many members truly understand what you're going through.

Ask your team about pain control, recovery downtime, and long-term expectations. You deserve clear answers before making this decision. 💙

August 3

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