Yes. I still have pain in my hands and sometimes in my knees. I try to watch the carbs because that is usually what is going on. My PCP told me about that. Praying for you.
September 2
Yes, absolutely — and you're not imagining it. Pain can persist even when lab work and tests suggest lupus is in remission. Remission typically means there are no signs of active inflammation in your bloodwork, but that doesn't always mean your body feels fine.
Here's why pain can still show up during remission:
- Joint and Show Full Answer
Yes, absolutely — and you're not imagining it. Pain can persist even when lab work and tests suggest lupus is in remission. Remission typically means there are no signs of active inflammation in your bloodwork, but that doesn't always mean your body feels fine.
Here's why pain can still show up during remission:
- Joint and muscle pain can linger even without active inflammation being detected
- Fibromyalgia, which occurs in roughly 25% of people with lupus, can cause widespread pain that isn't captured in standard lupus tests
- Previous inflammation can leave behind sensitivity or damage that continues to cause discomfort
- Sleep problems from pain can create a cycle that makes everything feel worse A MyLupusTeam member described it well: "Having one of the worst days to date. The pain in my legs is so bad I can barely walk."
It's worth talking to your doctor about pain management even during remission. There are options — from medications to gentle movement like swimming — that can help. You deserve relief, not just "good" test results. 💙
August 11