Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Marietta, OK
August 19
 · 
Reactions
A MyLupusTeam Member

Yes. I’m highly allergic to all steroids except Kenalog. It’s a fight every time to convince doctors that II’m actually allergic, So I carry my allergy testing with me everywhere I go - “true anaphylactic allergy”. Even still I get some that say you’re probably just allergic to the preservatives in the steroid. #allergictoallthegooddrugs

August 19
MyLupusTeam

Yes, being allergic to steroids is possible, though it's not super common. For people with lupus, steroids like prednisone are frequently prescribed to manage inflammation and flares — so it's a fair and important question to ask.

Signs of a steroid allergic reaction can include:

- Skin rash or hives
- Itching
- Swelling
- Show Full Answer

Yes, being allergic to steroids is possible, though it's not super common. For people with lupus, steroids like prednisone are frequently prescribed to manage inflammation and flares — so it's a fair and important question to ask.

Signs of a steroid allergic reaction can include:

- Skin rash or hives
- Itching
- Swelling
- Difficulty breathing (this is a medical emergency — call 911) It's also worth knowing that sometimes what feels like an allergy might actually be a side effect of the steroid rather than a true allergic reaction. Common side effects include weight gain, mood changes, skin thinning, and swelling — which can sometimes be mistaken for an allergic response.

If something feels off after starting or changing a steroid dose, reaching out to a doctor right away is the best move. Only a healthcare provider can determine whether it's an allergy or a side effect — and that distinction really matters for how it gets treated.

August 19
A MyLupusTeam Member

I was referred to an allergist for testing by my PCP. They did standard allergy testing - a skin test on my arm (small pin pricks with the steroid on the needle) and waiting for a response, injected a small amount of steroid under the surface of my skin on my arm and waited for a response. Because there’s different types of steroids they tested many. So being cognizant of how and where your reaction shows up is important. The allergy people only look for a reaction where they placed the test. In my case my arms have never shown any reaction to anything, everything always shows up on my lower extremities, torso, head (in my hair) and my breathing. My breathing was affected immediately but they glanced at my arm and left me in a room as my reaction escalated - coming back in to find me clawing at my throat to breathe.

August 23
A MyLupusTeam Member

How did they test?

August 22

Related Questions

View All
A MyLupusTeam Member asked a question 💭
Lauderdale, MS

A MyLupusTeam Member asked a question 💭
Mcdonough, GA

A MyLupusTeam Member asked a question 💭
Elkins, AR