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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 25
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A MyLupusTeam Member

How long have you had the itch. This and post pain Im still experiencing now for 3 months. It has disrupted my life thus far. I can say its better since I started taking amino acids such as Lysine, selenium, acetyl-l carnitine, alpha lipoic acid, Vit B, Vit C and Ca with vitamin K.

August 27
A MyLupusTeam Member

Yes I had a severe case of shingles, even though I received medication, this terrible itch never really stopped πŸ˜–πŸ˜ž

August 25
MyLupusTeam

Lingering pain after shingles is a real and frustrating experience, especially for those with lupus. This persistent pain is known as postherpetic neuralgia, and it can last well beyond the initial infection β€” sometimes months or longer.

It's worth knowing that shingles can lead to peripheral neuropathy symptoms Show Full Answer

Lingering pain after shingles is a real and frustrating experience, especially for those with lupus. This persistent pain is known as postherpetic neuralgia, and it can last well beyond the initial infection β€” sometimes months or longer.

It's worth knowing that shingles can lead to peripheral neuropathy symptoms (nerve-related pain, tingling, or electric shock sensations) both during and for up to four to six weeks after the infection. When pain stretches beyond that window, it's really important to loop in your rheumatologist.

Here are some things that may help manage lingering shingles pain:

- Talk to your rheumatologist β€” they can assess whether the pain is connected to lupus-related nerve involvement and adjust your treatment plan
- Ask about nerve pain medications β€” there are options specifically for nerve-related pain that your doctor can prescribe
- Track your symptoms β€” noting when pain spikes and what seems to trigger it can help your doctor pinpoint the best approach
- MRI or further testing β€” one MyLupusTeam member mentioned their doctor ordered an MRI when nerve sensations became frequent, which helped identify the cause

Since lupus treatments like immunosuppressives can increase shingles risk, your care team needs the full picture to manage both safely.

August 25

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