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From prednisone or the stress on my body back in June just showing up with my hair now?

September 1
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Answer Summary

Members responded to a question about hair shedding from prednisone and PMR by sharing their own experiences with hair loss linked to... Read more

Members responded to a question about hair shedding from prednisone and PMR by sharing their own experiences with hair loss linked to autoimmune conditions and medications. Several members suggested practical remedies including Biotin supplements, collagen peptides, hair growth products, adding protein to the diet, and brushing before washing to reduce breakage, while one member noted that low ferritin was the cause of their shedding and iron resolved it. A recurring theme was emotional solidarity around hair loss, with many expressing that it is a painful but shared experience, and one member suggested consulting a dermatologist or rheumatologist for personalized guidance.

A MyLupusTeam Member

Hi Frankie! I'm sorry to hear that you are having some hair concerns. I started losing my hair back in October, 2025, due to Systemic Lupus. I started taking Biotin, four 5,000 mcg tablets every morning, one scoop of Vital Proteins Collagen Peptides, unflavored (can be purchased through Amazon), and Kitsch hair products for hair growth (also through Amazon). I have seen an improvement in thickness, texture, and length. The shedding and thinness have improved too. I hope this helps you. Lupus is rough but, together, we can get you through this time. Hugs to you. Know that you are not alone. Your Lupus family's got you.

September 2
A MyLupusTeam Member

I've been in a flare for three years. My brush is always full of hair. I clean it daily. I typically brush my hair before washing it to help prevent breakage and I have worked more protein into my diet along with foods that help hair regrowth.

September 2
MyLupusTeam

Both are very plausible! Prednisone can cause hair and skin changes, and hair loss is a known side effect. The timing also makes sense — physical stress on the body can trigger a type of shedding that shows up weeks or even months later, so what happened in June could absolutely be catching up with you now. It's also worth Show Full Answer

Both are very plausible! Prednisone can cause hair and skin changes, and hair loss is a known side effect. The timing also makes sense — physical stress on the body can trigger a type of shedding that shows up weeks or even months later, so what happened in June could absolutely be catching up with you now. It's also worth keeping in mind that lupus itself can cause hair loss, so there are a few possible culprits here. As one MyLupusTeam member put it, pinning down the exact cause can be tricky when multiple factors are in play at the same time.

A few things your doctor might do to help figure out the cause:

- Hair pull test — gently pulling a small cluster of hair to check how much comes out
- Scalp biopsy — taking a tiny skin sample from the thinning area
- Blood tests — to rule out other contributing factors

The good news is that prednisone-related side effects often improve as the dose comes down — and you're already making great progress tapering to 7mg! It's worth mentioning the shedding to your rheumatologist at your next visit so they can take a closer look.

September 1
A MyLupusTeam Member

I've read that GLP1s can cause people to lose their hair, because people are losing weight too fast, and this puts stress on the body. Many treatments for hair loss caused by GLP1s include DHT blockers along with other nutrients. DHT blockers help stop shrinking hair follicles. But, with autoimmune disorders, DHT actually helps suppress the immune system. I have PCOS, and I read DHT blockers might help stabilize my hormonal imbalance, but the flip side is my immune system might be triggered. Discussing this with a dermatologist & rheumatologist might be a good idea. My husband just told me if I lose too much, just shave it off. More and more women with alopecia are opting to do this. It's definitely a cultural thing to expect women to have full heads of hair.

September 4
A MyLupusTeam Member

It does help the nails a lot and I think it does help hair to a certain extent

September 3

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