Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 23
 · 
Reactions
A MyLupusTeam Member

Sorry for that. I am not taking other than Prednisone to calm my joint pain but I'm worried because everytime I get to 5mg I had to start over and add more...non ending story

September 23
A MyLupusTeam Member

I've had reactions to plaquenil and Methotrexate, was supposed to be put on Myfortic, but they have been leaving me hanging. Hopefully, giving it a little more time will help. Have they discussed what anti-inflammatory type meds they could prescribe? I'm plastering myself with capsicum patches and ginger/mugwort moxtibustion patches right now just to get tasks done around the house. Keeping active helps, but every night is back pain for me.

September 23
MyLupusTeam

It's really frustrating when you're putting in the effort to manage lupus and not seeing the relief you're hoping for — especially with joint pain. That's a tough place to be, and it's completely valid to feel discouraged.

The good news (if we can call it that) is that hydroxychloroquine can take anywhere from one to three Show Full Answer

It's really frustrating when you're putting in the effort to manage lupus and not seeing the relief you're hoping for — especially with joint pain. That's a tough place to be, and it's completely valid to feel discouraged.

The good news (if we can call it that) is that hydroxychloroquine can take anywhere from one to three months to reach its full effect in your system. At four months, you may just be entering the window where it starts to make a real difference. It's not the fastest worker, but it can be effective over time. That said, since CellCept didn't work out and joint pain is still a significant issue, it's really worth having an open conversation with your rheumatologist. There are other treatment options they can consider, such as:

- Adjusting your hydroxychloroquine dose based on your body weight
- Adding a corticosteroid like prednisone to help reduce inflammation in the short term
- Trying a different immunosuppressant that may suit your body better

No two people with lupus respond the same way to medications, so finding the right combination can take some trial and adjustment. Your rheumatologist is the best person to guide that process.

September 23

Related Questions

View All
A MyLupusTeam Member asked a question 💭
Houston, TX

A MyLupusTeam Member asked a question 💭
Pittsburgh, PA