Sorry for that. I am not taking other than Prednisone to calm my joint pain but I'm worried because everytime I get to 5mg I had to start over and add more...non ending story
September 23
I've had reactions to plaquenil and Methotrexate, was supposed to be put on Myfortic, but they have been leaving me hanging. Hopefully, giving it a little more time will help. Have they discussed what anti-inflammatory type meds they could prescribe? I'm plastering myself with capsicum patches and ginger/mugwort moxtibustion patches right now just to get tasks done around the house. Keeping active helps, but every night is back pain for me.
September 23
It's really frustrating when you're putting in the effort to manage lupus and not seeing the relief you're hoping for — especially with joint pain. That's a tough place to be, and it's completely valid to feel discouraged.
The good news (if we can call it that) is that hydroxychloroquine can take anywhere from one to three Show Full Answer
It's really frustrating when you're putting in the effort to manage lupus and not seeing the relief you're hoping for — especially with joint pain. That's a tough place to be, and it's completely valid to feel discouraged.
The good news (if we can call it that) is that hydroxychloroquine can take anywhere from one to three months to reach its full effect in your system. At four months, you may just be entering the window where it starts to make a real difference. It's not the fastest worker, but it can be effective over time. That said, since CellCept didn't work out and joint pain is still a significant issue, it's really worth having an open conversation with your rheumatologist. There are other treatment options they can consider, such as:
- Adjusting your hydroxychloroquine dose based on your body weight
- Adding a corticosteroid like prednisone to help reduce inflammation in the short term
- Trying a different immunosuppressant that may suit your body better
No two people with lupus respond the same way to medications, so finding the right combination can take some trial and adjustment. Your rheumatologist is the best person to guide that process.
September 23