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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Another question... Informed and clarity helps me!!

A MyLupusTeam Member asked a question 💭
Houston, TX

For those of you who've taken it: have you been on the brand name CellCept, the generic (mycophenolate mofetil), or Myfortic (mycophenolic acid, the delayed-release one)?

Did you notice a difference in side effects between them? What symptoms did you have when you first started, and did they get better with time?

I'm asking because I started CellCept on Friday at 250mg twice a day, and within 24 hours I had severe nausea and woke up with drenching night sweats. I know some of it could be my steroi… read more

October 4
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Reactions

Answer Summary

Members rallied around a question about CellCept, mycophenolate, and Myfortic side effects, sharing their personal experiences with nausea,... Read more

Members rallied around a question about CellCept, mycophenolate, and Myfortic side effects, sharing their personal experiences with nausea, night sweats, and GI discomfort when first starting the medication. Several members offered helpful tips, including taking it with food, trying ginger tea, and asking doctors about switching to Myfortic, which is coated and easier on the stomach. A recurring theme was that early nausea often improved over time, and the community also surrounded the original poster with warmth and encouragement as she shared a scary hospitalization for a hypertensive crisis and lupus nephritis.

A MyLupusTeam Member

I was mychophelate with food then about 6 months ago i was told by pharmacist its doesnt absob in your system is i now take it one hr before i have breakfast & atleast 2 hrs after diiner personally i thoughr it was woking bwtter when i took it withfood i also didnt experience an nausea when i took with food not tharof it . My nausea started around that same time i dint put 2 & 2 together so maybe thats why im nauseated all the time now & why it came back because i take it on a completely empty stomach im not what should be doing & when i should bw taking it? Does anyone else take it on an empty stomach im not sure if i should go back to taking it with food & seeing if my nausea goes away

October 7
A MyLupusTeam Member

@A MyLupusTeam Member I agree with @A MyLupusTeam Member. This music is so relaxing and soothing. It’s definitely going to help me sleep on those “can’t get to sleep nights.” Thanks for sharing. 💜🎼💜🎼💜🎼💜

October 4
A MyLupusTeam Member

How are you doing, @A MyLupusTeam Member?

October 15
A MyLupusTeam Member

@A MyLupusTeam Member and @A MyLupusTeam Member Thank you both so much for the feedback great to know 🙏

October 13
A MyLupusTeam Member

@A MyLupusTeam Member, like @A MyLupusTeam Member, I have been on Cellcept for several years without the issue in this discussion.

October 11

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