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A MyLupusTeam Member asked a question 💭
Los Angeles, CA

Hi All! My power was out from 9am to 11:30 pm yesterday. It was planned maintenance and was supposed to be from 9-5 and went way over. I had placed 10 lbs of frozen gel packs on my fridges top shelf with my Benlysta on the shelf beneath it. I placed a thermometer right in front of my meds. Starting temp was 35 degrees Fahrenheit. As soon as the power came back on I checked my refrigerator and the temp was 45 degrees. I just want to confirm since it never went over 46 degrees, although all my… read more

October 9
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A MyLupusTeam Member

That happened to me twice. You will be fine. The second time, I called Benlysta Cares, and they replaced my supply because it had been out for too long.

October 9 (edited)
A MyLupusTeam Member

Thank you, Mrs V! I called GSK and they were more concerned that my starting temperature was 35, as Benlysta should be stored at 36-46. The refrigerator's temp choices go from 1 cold to 5 coldest so I went with the middle as the instructions suggested never really knowing what the actual temps were 😬Living in LA I've always focused on too hot vs too cold! So, the woman I spoke to is having the product safety team notify me. She also asked for my rheumatologists' contact info, both of which are unnerving, she assured me I'm not in trouble but now I'm thinking I shouldn't have provided my doctor's info. As long as he doesn't fire me as a patient, it's all good! Happy weekend! Xo!

October 9
MyLupusTeam

What a stressful situation — great thinking with the gel packs and thermometer though, that was really smart preparation!

Benlysta (whether autoinjector or prefilled syringe) should be stored in the refrigerator between 36°F and 46°F (2°C to 8°C). Since your thermometer showed a maximum of 45°F, it technically stayed within Show Full Answer

What a stressful situation — great thinking with the gel packs and thermometer though, that was really smart preparation!

Benlysta (whether autoinjector or prefilled syringe) should be stored in the refrigerator between 36°F and 46°F (2°C to 8°C). Since your thermometer showed a maximum of 45°F, it technically stayed within the safe storage range. That said, there are a few important cautions to keep in mind:

- A thermometer placed near the meds shows ambient temperature, but may not perfectly reflect the exact temperature the medication experienced throughout the outage
- The temperature may have fluctuated during the period before you checked
- Benlysta is an expensive biologic medication, so confirming safety is really important

The safest step is to call your pharmacist or GSK's Benlysta support line at (Phone number can only be seen by the question and answer creators) before using the medication. They can give a definitive answer based on the specific product details. Don't use it until you've confirmed it's safe with a professional.

October 9

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