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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Benlysta"

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Benlysta
A MyLupusTeam Member asked a question 💭

Has anyone switched from cellcept to benlysta? Can you share your experience with me?

A MyLupusTeam Member

My RA recommended I start this medication to wean off the cellcept and hydroxychloroquine I am currently taking. My labs haven’t gotten any better or worst, things are stable currently, but he… read more

Has Any One On Benlysta Had Weight Gain From It?
A MyLupusTeam Member asked a question 💭

I was reading side effects and just wondering..

A MyLupusTeam Member

I was on Benlysta infusions and then switched to the injections. I have gained weight with the injections and I thought I was going crazy. I just cannot lose it. Also, have not been feeling "right"… read more

Benlysta
A MyLupusTeam Member asked a question 💭

Has anyone tried the infusion/injectable Benlysta? This is the only medication specifically made to treat Lupus. My new rheumatologist would like to start me on this medication.

A MyLupusTeam Member

I am on the autoumjection benalysta for about 6 years and It does great things for all of your lupus and organs!!❤️😍

Does Anyone Feel Like Benlysta Made Their Lupus Worse?
A MyLupusTeam Member asked a question 💭

I just had my 6th infusion an every symptom I have ever had has come back an is steadily getting worse. I had some thing last clear up over time with imuran but after my last infusion on the first I'm back to the point I'm in so much pain an swollen I can't walk or open a bottle. Has anyone else had benlysta make then worse

A MyLupusTeam Member

After 8 months of giving myself injections I did not see any difference. It had gotten to where I dreaded the injections and was having panic attacks.

What Kind Of Medications Are You All On For The Lupus
A MyLupusTeam Member asked a question 💭
A MyLupusTeam Member

@A MyLupusTeam Member, all are natural supplements, including CN-SP, except for TP+SCs, which are your own stem cells
For prescription meds I am on Diltalizem for blood pressure, insulin for T1D, and… read more

Has Anyone Tried Benlysta? Side Effects? Benefits?
A MyLupusTeam Member asked a question 💭

I am considering benlysta and my doctor wants me to take it (infusion). I am worried about side effects.

A MyLupusTeam Member

Problem is taking one than one autoimmune disease medication. If the side effects of each med overlaps, the results are exponential, not just additive.

Morning Warriors. Is There Anyone On Benlysta? If So, What’s Your Thoughts?
A MyLupusTeam Member asked a question 💭
A MyLupusTeam Member

I've been taking benelysta for probably the last 5 months. I get the infusion once a month, I also take cellcept 2000 mg and prednisone 2.5-5mg. I didnt have any trouble with the infusion, but I will… read more

Bensylata
A MyLupusTeam Member asked a question 💭

For those on Benyslata or Imuran how you feel being on either medication. Thanks

A MyLupusTeam Member

I have been on Benlysta since 2011 when it was approved. Before 2006 I was
working perdiem as an RN. I am 63 and on disability. I’ve had lupus since 1994 and consider Benlysta a miracle drug for me.… read more

Benlysta
A MyLupusTeam Member asked a question 💭

Need some of you who are familiar with this biologic to give me your opinions. I understand everyone is different and responses to any meds are not the same due to our varying physiology. I’m on hydroxychloroquine and methotrexate but still in an active flare. My rheumatologist is suggesting this medication or a possible drug trial. I don’t have much more time before I have to return to full time work. I have already tried steroids. By body is not able to tolerate them.

A MyLupusTeam Member

Thank you for the info. I already have migraines and fatigue so hopefully it won’t get worse. Best wishes to you!

Benlysta Infusion
A MyLupusTeam Member asked a question 💭

I know several people on here have had Benlysta infusions and I'm wondering what if any reactions people have had? I've had not so great reactions to other biologics so I'm a little worried. I start tomorrow. Thanks for any information.

A MyLupusTeam Member

@A MyLupusTeam Member. Yes but taking infusions in the hospital. At Duke. I don't have issues with nausea but I do get tired. And cold and have terrible leg cramps. But a lot of it is I can't get… read more