My problem with Benlystis is that something always happened to other parts of my body had to have a Pacemaker heart rate dropped to 26 something happened to my back you say that every time I get on… read more

Problem is taking one than one autoimmune disease medication. If the side effects of each med overlaps, the results are exponential, not just additive.

That was pleuracy issues!

@A MyLupusTeam Member, all are natural supplements, including CN-SP, except for TP+SCs, which are your own stem cells
For prescription meds I am on Diltalizem for blood pressure, insulin for T1D, and… read more

I've been taking benelysta for probably the last 5 months. I get the infusion once a month, I also take cellcept 2000 mg and prednisone 2.5-5mg. I didnt have any trouble with the infusion, but I will… read more

@A MyLupusTeam Member. Yes but taking infusions in the hospital. At Duke. I don't have issues with nausea but I do get tired. And cold and have terrible leg cramps. But a lot of it is I can't get… read more

Where is your neuropathy? Feet arms legs? Did your rheumatologist prescribe this?

@A MyLupusTeam Member
Voclosporin is a pill. Common name is Lupkynis. Was the Benlysta helping you? I felt like it was helping me then it slowly started to lose its effectiveness. I really don't think… read more

I take Benlysta infusions with no problems! Definitely helped my joint pain quickly...was really surprised, as I fully expected it to take 6 months. I believe it's also helping my lupus rashes...but… read more

I started with benlysta auto injector but had injection site reactions about week after I gave myself each shot so after a few months my doctor switched me to the infusion. I’m trying to measure… read more