I was reading side effects and just wondering..
My problem with Benlystis is that something always happened to other parts of my body had to have a Pacemaker heart rate dropped to 26 something happened to my back you say that every time I get on… read more
I am considering benlysta and my doctor wants me to take it (infusion). I am worried about side effects.
Problem is taking one than one autoimmune disease medication. If the side effects of each med overlaps, the results are exponential, not just additive.
Has anyone switched from cellcept to benlysta? Can you share your experience with me?
That was pleuracy issues!
@A MyLupusTeam Member, all are natural supplements, including CN-SP, except for TP+SCs, which are your own stem cells
For prescription meds I am on Diltalizem for blood pressure, insulin for T1D, and… read more
I've been taking benelysta for probably the last 5 months. I get the infusion once a month, I also take cellcept 2000 mg and prednisone 2.5-5mg. I didnt have any trouble with the infusion, but I will… read more
I know several people on here have had Benlysta infusions and I'm wondering what if any reactions people have had? I've had not so great reactions to other biologics so I'm a little worried. I start tomorrow. Thanks for any information.
@A MyLupusTeam Member. Yes but taking infusions in the hospital. At Duke. I don't have issues with nausea but I do get tired. And cold and have terrible leg cramps. But a lot of it is I can't get… read more
How is it helping? What are the side effects? My doctor is going to put me on it soon.
Where is your neuropathy? Feet arms legs? Did your rheumatologist prescribe this?
Been on benylsta infusions for about four months and everytime i get my benlysta the day of or the day after, my eyes start to become really red and inflammed and hurt and also my body starts to ache and joints hurt? I have to call my dr days later to tell her about this and she has given me a steriod shot which helps me right away?
Any info will be helpful good or bad :)