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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Benlysta"

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Has Any One On Benlysta Had Weight Gain From It?

Has Any One On Benlysta Had Weight Gain From It?

I was reading side effects and just wondering..

A MyLupusTeam Member

My problem with Benlystis is that something always happened to other parts of my body had to have a Pacemaker heart rate dropped to 26 something happened to my back you say that every time I get on… read more

Has Anyone Tried Benlysta? Side Effects? Benefits?

Has Anyone Tried Benlysta? Side Effects? Benefits?

I am considering benlysta and my doctor wants me to take it (infusion). I am worried about side effects.

A MyLupusTeam Member

Problem is taking one than one autoimmune disease medication. If the side effects of each med overlaps, the results are exponential, not just additive.

Benlysta

Benlysta

Has anyone switched from cellcept to benlysta? Can you share your experience with me?

A MyLupusTeam Member

That was pleuracy issues!

What Kind Of Medications Are You All On For The Lupus

What Kind Of Medications Are You All On For The Lupus

A MyLupusTeam Member

@A MyLupusTeam Member, all are natural supplements, including CN-SP, except for TP+SCs, which are your own stem cells
For prescription meds I am on Diltalizem for blood pressure, insulin for T1D, and… read more

Morning Warriors. Is There Anyone On Benlysta? If So, What’s Your Thoughts?

Morning Warriors. Is There Anyone On Benlysta? If So, What’s Your Thoughts?

A MyLupusTeam Member

I've been taking benelysta for probably the last 5 months. I get the infusion once a month, I also take cellcept 2000 mg and prednisone 2.5-5mg. I didnt have any trouble with the infusion, but I will… read more

Benlysta Infusion

Benlysta Infusion

I know several people on here have had Benlysta infusions and I'm wondering what if any reactions people have had? I've had not so great reactions to other biologics so I'm a little worried. I start tomorrow. Thanks for any information.

A MyLupusTeam Member

@A MyLupusTeam Member. Yes but taking infusions in the hospital. At Duke. I don't have issues with nausea but I do get tired. And cold and have terrible leg cramps. But a lot of it is I can't get… read more

How Many Of Your Are On Benlysta?

How Many Of Your Are On Benlysta?

How is it helping? What are the side effects? My doctor is going to put me on it soon.

A MyLupusTeam Member

Where is your neuropathy? Feet arms legs? Did your rheumatologist prescribe this?

My Rheumatologist Is Considering Replacing My Benlysta With Saphnelo And My Cellcept With Voclosporin. Anyone Take These With Results?

My Rheumatologist Is Considering Replacing My Benlysta With Saphnelo And My Cellcept With Voclosporin. Anyone Take These With Results?

A MyLupusTeam Member

@A MyLupusTeam Member
Voclosporin is a pill. Common name is Lupkynis. Was the Benlysta helping you? I felt like it was helping me then it slowly started to lose its effectiveness. I really don't think… read more

Has Anyone Had Benylysta Allergic Reaction?

Has Anyone Had Benylysta Allergic Reaction?

Been on benylsta infusions for about four months and everytime i get my benlysta the day of or the day after, my eyes start to become really red and inflammed and hurt and also my body starts to ache and joints hurt? I have to call my dr days later to tell her about this and she has given me a steriod shot which helps me right away?

A MyLupusTeam Member

I take Benlysta infusions with no problems! Definitely helped my joint pain quickly...was really surprised, as I fully expected it to take 6 months. I believe it's also helping my lupus rashes...but… read more

I'm Waiting For The Company To Send Me Benelsta, Does It Help, Any Suggesting A Before I Start? Do's And Fonts. Any Info Will Be Helpful :)

I'm Waiting For The Company To Send Me Benelsta, Does It Help, Any Suggesting A Before I Start? Do's And Fonts. Any Info Will Be Helpful :)

Any info will be helpful good or bad :)

A MyLupusTeam Member

I started with benlysta auto injector but had injection site reactions about week after I gave myself each shot so after a few months my doctor switched me to the infusion. I’m trying to measure… read more