Connect with others who understand.

sign up log in
About MyLupusTeam
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Cyclosporine"

reset

Can You Take Cellcept With Food?

Can You Take Cellcept With Food?

I take two 500 mg tablets of cellcept (mycophenolate) two times a day one hour before or two hours after I eat. My doctor specified that I have to take the pills without food, but after researching the pill I found that a lot of people eat food with the pill to settle their stomach. If you're on the medication, how do you take them?

A MyLupusTeam Member said:

i always eat about 1/2 hour after taking mycophenolate otherwise it really makes me feel ill, i also take plaquenil and steroids and somac in the mornings and also take warfarin and codeine in the… read more

posted almost 3 years ago

Cellcept And Fatigue

Cellcept And Fatigue

I am curious. Ever since I started Cellcept a few weeks ago, my fatigue has gotten so much worse. This stuff is supposed to help me get better and I feel drained and crappy all the time! Is this a medication that you need to get used to? Or, is this it?

A MyLupusTeam Member said:

Interesting cellcept has never made me tired or fatigued I was always dealing with fatigue anyway so perhaps that is why I have been on cellcept since 2006 when cyclosporine damaged my kidneys rather… read more

edited, originally posted over 4 years ago

Lupus Nephritis

Lupus Nephritis

How many on here suffer from lupus nephritis? If so what are your current treatments. My symptoms right now include lower body edema and high blood pressure. I am taking cyclosporine but want to seek out other treatments with my nephrologist. What are your symptoms and other medications that you take for a nephritis?

A MyLupusTeam Member said:

I've had edena in the past. My doctor has me on Maxide and Plaquenil. It works very well for me

posted 6 months ago

Cyclosporin

Cyclosporin

Has anyone else been on Cyclosporin? Dr is looking for another drug to add to control lupus besides plaqunil benlysta and prednisone. I had previously tried methotrexate, azathioprine and cellcept with different reasons on why we needed to switch. Since this is less common looking for more input on side effects to expect. Is there nausea when startup that goes away? Toxicity issues to look out for? Issues with contraceptive use? Anything else?

Thanks for the info.

A MyLupusTeam Member said:

I've been taking Cyclosporine for 24 years for a kidney transplant. The worst side effect for me was that it causes facial hair growth--and when I was in my childbearing years, it was a significant… read more

posted over 3 years ago

Benlysta Question

Benlysta Question

I have a question. When someone starts Benlysta, does this help eliminate other medications such as Plaquenil, Methotrextate, etc or do you still have to continue on them as well???

A MyLupusTeam Member said:

I'm still on Cellcept and plaqenele (sp?) but I was able to taper down on prednisone when I was in Benlysta which I'm very sensitive to when I'm not on Benlysta, coming down of prednisone is brutal… read more

posted over 4 years ago

Kidney Involvement

Kidney Involvement

For those of you who have kidney involvement with this disease how did u find out or what were the clues? My pcp tested my urine yesterday as i was having some problems with using the bathroom. I would feel like i had to go real bad and when i did i only went a little bit, this has been happening on and off for about a month, some days im fine others im not, so they tested my urine and it came back with protein, leukocytes, and blood in my urine. Is this something that i need to be concerned… read more

A MyLupusTeam Member said:

@A MyLupusTeam Member... great that it is a face to face appointment. 🙏🏼

posted 6 months ago

What Is An Alternative To Steroids To Get Through A Flare?

What Is An Alternative To Steroids To Get Through A Flare?

I take plaquenil and have weaned off Prednisone and am flaring...what could I do to avoid steroids?

A MyLupusTeam Member said:

I started Medrol dose pak

posted almost 5 years ago

FSGS

FSGS

I was wondering if anyone else has been diagnosed with this and what medication are you on for treatment? My kidney doctor possibly wants to put me on cyclosporine but after reading up on it I'm real iffy. The side effects are crazy!

A MyLupusTeam Member said:

I am on myfortic and irs helped!

posted about 4 years ago

Finger Sores

Finger Sores

‪for a few years i have had these cut things around my finger nails on multiple fingers on both hands, and i always wondered why because i don’t pick at my fingers.‬ ‪i just found out this kind of thing happens in people who have Lupus.‬ has this ever happened to anyone else?

A MyLupusTeam Member said:

Wow, I recently started getting these and was wondering if it’s lupus related. Thanks now I know

posted over 2 years ago

Lupus Nephritus

Lupus Nephritus

Just wondering how Lupus Nephritus may have started for others. What treatments and other signs and symptoms? Thx

A MyLupusTeam Member said:

Thank you @A MyLupusTeam Member how have you been?

posted over 4 years ago