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I have the exact same symptoms have tried every eye drops over the counter Systane eye drops were doing the job for a few years but it seems that as I get older I have brand new symptoms and very dry… read more
Has anyone else been on Cyclosporin? Dr is looking for another drug to add to control lupus besides plaqunil benlysta and prednisone. I had previously tried methotrexate, azathioprine and cellcept with different reasons on why we needed to switch. Since this is less common looking for more input on side effects to expect. Is there nausea when startup that goes away? Toxicity issues to look out for? Issues with contraceptive use? Anything else?
Thanks for the info.
I've been taking Cyclosporine for 24 years for a kidney transplant. The worst side effect for me was that it causes facial hair growth--and when I was in my childbearing years, it was a significant… read more
I have a question. When someone starts Benlysta, does this help eliminate other medications such as Plaquenil, Methotrextate, etc or do you still have to continue on them as well???
I'm still on Cellcept and plaqenele (sp?) but I was able to taper down on prednisone when I was in Benlysta which I'm very sensitive to when I'm not on Benlysta, coming down of prednisone is brutal… read more
I was wondering if anyone else has been diagnosed with this and what medication are you on for treatment? My kidney doctor possibly wants to put me on cyclosporine but after reading up on it I'm real iffy. The side effects are crazy!
I am on myfortic and irs helped!
Has anyone taken this yet? I know its new and my doc is starting me on it soon bc nothing else is working… any advice
I take plaquenil and have weaned off Prednisone and am flaring...what could I do to avoid steroids?
I started Medrol dose pak
I am curious. Ever since I started Cellcept a few weeks ago, my fatigue has gotten so much worse. This stuff is supposed to help me get better and I feel drained and crappy all the time! Is this a medication that you need to get used to? Or, is this it?
Interesting cellcept has never made me tired or fatigued I was always dealing with fatigue anyway so perhaps that is why I have been on cellcept since 2006 when cyclosporine damaged my kidneys rather… read more
How many on here suffer from lupus nephritis? If so what are your current treatments. My symptoms right now include lower body edema and high blood pressure. I am taking cyclosporine but want to seek out other treatments with my nephrologist. What are your symptoms and other medications that you take for a nephritis?
I've had edena in the past. My doctor has me on Maxide and Plaquenil. It works very well for me
Just wondering how Lupus Nephritus may have started for others. What treatments and other signs and symptoms? Thx
Thank you @A MyLupusTeam Member how have you been?
‪for a few years i have had these cut things around my finger nails on multiple fingers on both hands, and i always wondered why because i don’t pick at my fingers.‬ ‪i just found out this kind of thing happens in people who have Lupus.‬ has this ever happened to anyone else?
Wow, I recently started getting these and was wondering if it’s lupus related. Thanks now I know