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Çok iyi düşünmüşsünüz.İnşallah işe yarar.Benim iyi gidiyor bu aralar teşekkür ederim.Geçen bi hastayla instgrmdan yazıştım telegram grupları varmış Türkiyedeki hastaların linkini alacağım eğer eşiniz… read more
Apparently, Osteoarthritis has done a number on me. I was just told I have to have a HIP REPLACEMENT!! I know my jaw dropped to the friggin’ floor when I heard that!! I told him no thanks, I’m too young for that. He just laughed and said age has nothing to do with it. I’m probably not going to win this one.
I had had Right hip pain for over 30 years, BC too. after children did not seem to make it worse, just a constant
Hey y’all so i decided to go back to work. As im job hunting im wondering when to disclose about my lupus or even if i have too? Do i do it in the interview or wait til i get hired ?
Any insights are appreciated !
PS I got diagnosed while i was at my old job. So i told my boss i have Lupus.
Would Lupus be a covered category under the ADA?
what songs would you recomend
I listen to Gospel most of the time. Frankie Beverly & Maze, Otis Reddin, Sam Cook Aretha Frankin amd Galdys Knight.It takes me back.
I recently was diagnosed with antiphospholipid antibody syndrome due to lupus. I have had problems with my blood over clotting for over 15 years but was just formally diagnosed with lupus 2 years ago. No one else in my family has ever heard of the blood over clotting since they all have very thin blood (including those who have passed from lupus). I am in a town where doctors don't really understand lupus so treatment is hard to understand for them. Besides blood thinners what can be done… read more
I was diagnosed with aps in 2001 while I was pregnant with my son my only living child. I had a stillborn before him and a baby girl that lived only 2 days. I was told i have a blood disease that… read more
how do people react when you tell them you have Lupus usually get a strange reaction .like Oh my God..I don't want pitty nor do I like that reaction..i was just wanted to know your experiences..
Family members are the worst.
At first I thought this was eczema but eczema cream isn’t curing it and I just thought that this might be my first lupus rash. Please share your thoughts. Also, i’d gladly take any advice to help!
I would ask for a steroid ointment and trwatment
My Rhuemy says I have Drug Induced Lupus.. so how is that different from SLE?
I read an article about drug induced lupus. below is a summary of what it said.
Drug-induced lupus erythematosus is similar to systemic lupus erythematosus (SLE). It is an autoimmune disorder. This… read more
Im starting it bc Imuran didnt really work for me. Also taking folic acid. Just wondering what everyone thought of it, since it takes so long to kick in... Makes me dizzy though!
Definitely stay positive. It might depend on how much you take, too. I have anti-nausea medicine but have not had to use it
My Rheumatologist said to take it just before bed, but be sure to drink… read more
Is it common for SLE patients to have insomnia? It is always hard for me to fall asleep..
Yes I find it difficult my Doctor as now give me sleeping pills but I dont think this will resolve my problem and I dont want to get too addicted to them.