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Yes my hearing loss began 2007 and I feel it was related
Anyone here receiving SSDI
I’m at the hearing stage
I am so confused. I got a letter dated Dec. 16, received on the 22nd. They were asking for more doc to see if a "fully favorable decision" can be made without holding a hearing. Naturally, it was the holidays. Requested medical records on 23rd. Sent me the wrong one on the 28th. I had to request again...sent me ALL not just the dates I neeed. It was on the 4th. I have finally finiished dissecting it all. The Stanford medical… read more
Hope ya have a good lawyer. Be careful and best of luck. I got screwed over when i tried to get that after working for 18 1/2 yrs. At Scholastic book company
I started stumbleing around and falling
I know the feeling, I have fallen so much over the past year, but the last year or so has been the worst.
I experienced a bad bout of vertigo/dizziness/off balance/nausea/continued moving motion even though I was still🤔 Then all of sudden I couldn't hear in my left ear. At e.r., of course they run tests and up Prednisone and give antibiotics. Later went to 2 different ENTs & had tests, which resulted in 'Single Ear Deafness/Dead Ear? They assume came from lupus flare and nerve endings inflamed in the area of ear. They don't know a prognosis 🤷🏾♀️🤦🏾♀️ I didn't know hearing aids are so expensive… read more
I take singular, zyrtec etc I've had aches like a tooth ach it helps me.
This is driving me crazy, years ago I started loosing my hearing. Now I’m having eye issues, I’m scheduled to see a specialist but everything moves so slowly.
What are your eye issues: dry eye, cataracts, glaucoma, macular degeneration, detached retina, or other?
Depending on eye issue is how it is treated.
I have APS and was hospitalized 2yrs ago with multiple blood clots (a PE, ONE IN MY JUGULAR AND LEFT LEG). I have been having difficulty swallowing and having a feeling of food not going down, which makes me have these bouts of severe coughing. So my Gastro doc wants me to have an endoscopy. But he wants me off blood thinner for 4/5 days prior. My hematologist says I can't be off my blood thinner that long. My hematologist then gave me a box of LOVENOX to take 3 days prior stopping the day… read more
To MyCrazyLife - I'm laughing because that 1-2-3-GO is what I do with injectables. A nurse taught me. I actually cannot push the needle in without the 123GO mantra. I grab the belly fat, 123GO, push… read more
Good Morning everyone... I am in serious serious need of help, does anyone knows of foundations that would help people with disabilities like lupus, fibromyalgia, cause I am about to lose my power in my apartment and about to lose my apartment to and be homeless with my 2 kids, please I need help I have no one to turn to and I am all alone with no family in Florida. Thank you everyone.
Please contact Catholic charities as a 1st step....go to any church and ask them if they can help you in some way....does the goverment in Florida have any assistance programs? I am very sorry that… read more
Yes--it's an inner ear disturbance with tinnitus, vertigo, and hearing loss--usually not severe.
Good luck.
How many of you have constant ringing in your ears and does that bother you when you are trying to sleep?
Thank you SO much for the thoughtful informative answers 🙏
I did have hearing testing years ago when dx’d with the Meineres but never any extensive testing like you mentioned! This is great info. I… read more
Is it best to have a c-section or normal delivery with SLE?
I was 36 when I had my daughter. I was a high risk. I had a c-sect because the doctor didnt want trauma
to face my kidney. She was taken 3 days before her due date. I was diagnosed with Lupus in… read more