Need help!!! I need treatment suggestions from anyone who has symptoms but blood work is normal. I have had symptoms off and on for at least 6 yrs. skin biopsy confirmed lupus (SLE or cutaneous- doctors cant decide because all of my blood work remains normal). also dx with sjogren's (elidel and restasis). I have the most patient rheumy (Neucks- Indpls). but at lose on treatment. on plaquenil which helps skin and some of systemic symptoms. tried methotrexate, imuran, … read more
Caught a horrible case of strep throat that contributed to an ear infection which caused a high fever and of course had major body aches as a result. I am now recovering from the illness but now I am in a horrible flare. I also noticed that other painful injury seem to cause flares. For example I sprained my wrist and am in excruciating pain one day. I wake up the next and my body has followed suit and decides to be in excruciating pain as well.
This may be a dumb question but does fever and pain… read more
Has anyone else had a child and then the symptoms worsened? Before I had my son I used to be in pain all the time but dr never knew why and then after I became pregnant the test showed everything. From blood work. When my dr went back 4 years my blood work was perfect something triggered it 3 years ago which was my baby. I hope I'm making sense trying to explain
Hi all… has anyone else been on quite a few different medicines for lupus? What seems to work the best?
I have a question for anyone who can help or has advice. I got diagnosed with discoid lupus when u was 15 and now i am 25 and have been having almost all the symptoms of SLE for a few years but my blood work is always negative so all the doctors have wrote me off. I am so frustarted. Has this happened to anyone before? Butterfly flare is so bad lately and been extremely tired and my joints in my hands are hurting, stiff and swollen to where it's hard to use them. Also I have pelvic congestion so… read more
I recently read research on UVA-1 being successful in the treatment of Systemic Lupus. Why is this treatment not listed as an alternative treatment nor is it promoted by doctors. It seems like it's worth trying compared to the awful drugs.
I am new to the forum and just got diagnosed with SLE. It first started out with numbness in my hands and then feet in June. After ruling out MS and other diseases, I found out I had high protein in my urine due to expansion of the kidney filters which led to diagnosis of lupus. The kidney function itself is fine. The blessing is, I don't have any secondary issues such as high blood pressure, diabetes, cholesterol etc. and have normal weight for my… read more
Reading over my doctor notes for my chart i see that he diagnosed me with, pericarditis with small pericardial effusion, valvular heart disease with moderate tr, left pleural effusion s/p thoracentesis whatever that is. My doctors dont really say too much because im young but all of this sounds serious and im tired of going through the chest pains, swelling feet and weight gain. Not to mention im extremely tired now no matter how much sleep i get, and the pain from my… read more
Hello everyone! Does anyone know a good rheumatologist in Tampa, Fl?