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Swelling joints in knees, feet and toes.
For myself, I prefer a natural diuretic (celery) plus plain water. Downside, you will be losing water constantly by urinating.
Has anyone had Pericarditis/Pericardial Effusion as a result of lupus that won't go away?
Thanks for the tip
Hi, I am currently being tested for an autoimmune diseases, I think we are leaning towards lupus right now. My ANA test came back as 1:160 with a speckled pattern, CRP level is high and I have a negative RF factor and normal CCP. I just got 7 more vials of blood drawn yesterday for C3 andC4, anti phospholipid, anti dsdna and I'm not sure what the other tests are. I'm also getting a urine done to check for protien. As for symptoms, I have been having arthritis type pains that travel between my… read more
So, saw the rhuematologist last month, she believes it's either psoriatic arthritis or some kind of Ankylo arthritis. Getting an MRI of my foot and ankle on the 21st and I had to go off of Meloxicam… read more
I'm 65 years old taking Benlysta for Lupus. I had the flu shot but I am wondering if it will help since I'm taking a drug to suppress my immune system.
Thank you for this information and for sharing your personal experience. I’m so sorry you have had to go through that!
I want to know if anyone has had any of the levels from the ADSDNA, white cell, red cell , compliment count showing a normal level?
Thank you!
@A MyLupusTeam Member
Glad to be of help here. Hopefully your experience with this med is going better than mine. Hugs, Sherry
Anybody have piercings with lupus ?? I have bullous lupus is it safe to get a piercing ? Or tattoo
Omg you are my bullous budy!! 🤪🥺❤️i wouldnt do it.
I know several people on here have had Benlysta infusions and I'm wondering what if any reactions people have had? I've had not so great reactions to other biologics so I'm a little worried. I start tomorrow. Thanks for any information.
@A MyLupusTeam Member. Yes but taking infusions in the hospital. At Duke. I don't have issues with nausea but I do get tired. And cold and have terrible leg cramps. But a lot of it is I can't get… read more
I did Benlysta infusions for over two years - they wipe me out by putting me in bed for 2 days and then weak for a week (exhaustion; achy like flu; migraine; fever; dizziness; weak). I recently switched to injections in the hope that the smaller dose wouldn’t make me as sick. They are still wiping me out but now I’m sick every single week! Help! Anyone had a similar experience?
Omg I thought I was losing it. I feel horrible. This past Dec 28th I had my 2nd infusion. I thought well at least I could give it a try considering, my life long affair with prednisone. The one and… read more
me on different sleep aids nothing works. Any suggestions?
Benadryl