Quick Links
Resources
About MyLupusTeam
Powered By
I find it really difficult to remember to reapply every two hours, and many of the sunscreens I've tried don't seem to provide all that solid protection. I'm wondering if there are any new sunscreen innovations that provide better or longer lasting protection? What works for you?
Thanks for any thoughts!
Melissa
lovelywithlupus.blogspot.com
Neutrogena Dry-Touch because I cannot stand being sticky!!! Cera-Ve was OK but it left me looking like I'd been dusted with flour. I don't do tinted because it ends up on my shirt sleeves and collar… read more
I have been looking for months for some kind of support group or seminar in the Danbury, CT area and have not been able to find anything.Does anyone know of any or know a good place for me to look?
Aw, thanks! Hopefully things will begin to turn around for you. Remember you are never alone! Good luck in finding a good doctor. Ones that honestly care are few and far between. :) have a great… read more
I've unfortunately missed 4 doses of my imuran. Is there anything I should be worried about? Or is there anything I should know?
Thank you. It's my own fault just didn't get the chance to get more before I ran out.
I have had pain in kidney region, mostly right, on and off for years. I always have blood in urine. I have swelling below the knees almost constantly. My doc has never mentioned Lupus Nephritis?! hmm
Get to a nephrologist ASAP. I was missed diagnosed in the beginning with just Lupus. I don’t want to scare you but kidney involvement is very serious. I’ve had 2 kidney transplants. Good luck 🙏
My niece was just admitted to the hospital with stroke like systems,Her face swelled so much you can barely see her eyes ,when she walks her left leg drags slightly behind the left side of her face is tingly and has a very slight droop to it.They have run many tests CT scans MRI's ect...But because of my autoimmune history are focusing in that direction for now mainly Lupus.Has anybody ever heard of symptoms like this?
Glad to hear it's nothing serious. Migraines are manageable, but the severity can be debilitating. Is she on preventive medication?
Just starting azothiapin, did anyone have any side effects or advice on how to best manage this medication?
Thanks
Put some food in your stomach, and take Azathioprine with a glass of water and rest while you digest the pills, helps prevent nausea. For me thinning hair initially, then regrowth, now thick.Taken… read more
I wouldn't risk it but I have a kidney transplant to worry about and don't want Lupus to become active more than it is already and lose this kidney.
So I have never had any kidney problems to date... But recently I have been feeling like I've been having a UTI, but nothing burns or hurts, just have to pee so often but not much comes out... I've been "double voiding" every time just to ease some of the pressure and times I've gotta run to the bathroom... I also had a full achy pain on my right flank that went away after a day or so ... So now I've been drinking all of the cranberry juice I can find lol, but am nervous that maybe this is lupus… read more
Good morning kidney warriors please exam the food you are eating even your everyday foods can start to harm you look reasearch everything that goes in your mouth we were not born with bad kidneys… read more
Has anyone had their lupus to attack or cause kidney failure? If so do you eventually receive an kidney transplant? In order to prevent the lupus from attacking your transplanted kidney what medications or diet you follow?
@ GrannyBeth I am currently taking prednisone and Plaqenil to treat my lupus. Do eat certain foods to supress the lupus flares?
Hi all, i know some of you know that ive been having issues with my urine results lately from protein and blood being in my urine to even ketones as well as just about every abnormal thing you can find in urine was there. So my rheumy had me do another sample of course, this time there was no blood or protein just bacteria and a high protein/creatine level. Now she wants to say my diet can have an effect on my urine samples but i havent changed anything about my diet. When i had the abnormal… read more
It took my pcp a few years to see that something was wrong. My fingers and hands had begin to swell i was in so much pain, i knew about the rheumatoid arthritis for yesrs but Just diagnosed with Lupus… read more