Has anyone with systemic AND discoid Lupus ever had vasculitis on the feet & had to go through Auto Amputation of the toes?? Just want to find someone I can relate to/with.
I’ve noticed my skin on my upper thighs turning dark at times . I havent been in the sun. Is this a symptom of lupus or a flare?
Ty!
I had a lot of hair loss and decided to go to a dermatologist. Well ol doc and I thought it was good ol lupus but it is Areata alopecia. This alopecia you lose all your body hair permanently it even… read more
Yep. I did experience that. Freaked me out at first cause I don't or didn't bruise easily.😅
I have been on prednisone for 3 days, 20mg, tapering for next 25 days. Have done this for years, but 1st time I have had throbbing headache for last 18 hrs😩.
Anyone else?
Have taken, tramadol and Motrin.
I take magnisium everyday and it has helped with me getting headaches
For the last 48 hours, I have slept off and on for about 38 of those hours. I was up last night for 6 hours and for 4 hours the night before. I woke up this evening at around 7:30ish (pm) and it's now 1:25am but I have felt very tired and sleepy the entire time. My speech is slurred and I feel somewhat drunk or high (not in a good way).
I also have hypothyroidism, so I never really know what symptoms are fro what disease.🤷🏼♀️😞
I just want to feel normal again. Like I did in my 20s!
Yes. I have Chronic Fatigue.
Would anyone like to share something s thar hard for them now more details
Mostly jount pain. My right hand knuckle is swollen. Right now can't write long with my left hand because sometimes hurts. For me weather is the biggy.
Even as an 19 year old, prior to lupus dx, I have had pain in both legs beneath the knees (x-rayed and no arthritis) It's not in any of my FM sites. It is deep muscular pain. Walking relieves it for awhile but then returns.
In an article comparing FM and SLE sites of pain, it stated it was due to SLE. Has anyone else read that/experienced the same?
Am on non steroidal and pain meds but nothing relieves it.
Thank you for trying to help! Susan
I walk an average of 2 miles a day and do an hour's of yoga twice a week! Will pay more attention to my water intake...Thank you both
Do y'all get tired and sleepy during the day even though y'all get plenty of rest n sleep?
Hello,sorry about ur flare ups.But don't give up.I've been having a few but try n keep doing my stuff at home cause I get behind.
I am always in pain and beyond tired. I need to lay down after taking a bath :( resting does not help. If I don’t do something I will lose my job and my house. I am a single mother so part time work is not really an option. I am going to talk to a trainer this week but I doubt they know much about working with someone with Lupus and Fibro. Just wonder if anyone has had luck. Thanks in advance.
Keep us updated on how things are going for you Jackie. We are your encouragement and support ❤️