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About MyLupusTeam
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Pamelor"

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Hey 🙂

Hey 🙂

Has anyone with systemic AND discoid Lupus ever had vasculitis on the feet & had to go through Auto Amputation of the toes?? Just want to find someone I can relate to/with.

Painful Burning Skin

Painful Burning Skin

I apologize if this has been covered before. I am still newly diagnosed so trying to get my head around everything. I am experiencing serious burning skin feeling, particularly in my left thigh. Is this a thing? And does anyone have any suggestions? I have my first appointment with my rheumatologist in 2 weeks. I’m struggling and feel lost 😞

A MyLupusTeam Member

Yes! We are all in this battle together! Prayers, support, and love to you!!!🦋

Lupus And Mood Swings.

Lupus And Mood Swings.

Hello Everyone,

I have noticed that the past couple weeks I have separation anxiety and moments of wanting to cry but just a few minutes later I feel totally fine! I have never had depression or any mental health concerns at all!!!!!!!!!! No mood swings or such at all! I have always had dogs and yes saying goodbye to them when they pass is never easy but I have never felt any separation anxiety with living pets or with family members. But now I feel pretty crummy even if my boyfriend is out to… read more

A MyLupusTeam Member

Please, just know it's ok, !OK? I have a Beautiful Bible and when I'm really sad I go hug it AND...I can feel it hug me back!!

Has Anyone Experienced Difficulty Walking?

Has Anyone Experienced Difficulty Walking?

I have SLE and was diagnosed about five years ago and has gone rapidly downhill since. This year is exceptionally difficult with the heat waves etc. as I find I have absolutely no energy even to walk my poor dog, or do house work. Unfortunately I have reached a point where I have to look for a walker. For someone that used to be very active it playing rackets sports etc it is very hard to accept the drastic decline at the age of 77. As I also have COPD therefore I am not sure which chronic… read more

A MyLupusTeam Member

I recently tried a 1/2 mile hike in the Blue Ridge mountains. It was really hard and a young lady gave me a staff to use when she saw me struggling. It helped! My takeaway from this is to speak with… read more

I Am Still Learning How To Use This Site Answering Or Sending Hugs, Etc. So If I Don't Answer Or Send Hugs, It Is Not On Purpose.

I Am Still Learning How To Use This Site Answering Or Sending Hugs, Etc. So If I Don't Answer Or Send Hugs, It Is Not On Purpose.

Oops, see I put my msg in the question area.

A MyLupusTeam Member

I’m glad I’m not the only one not finding this site intuitive! 😂 Right there with you

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Skin Cancer

Skin Cancer

Just found out the small bump on my face that was removed is squamous cell carcinoma and my dermatologist is sending me to surgeon. Has anyone else had this? I’ve read that there may be a connection with skin cancer and lupus. Just curious to see if anyone else has had it.

A MyLupusTeam Member

I also recently had a squamous cell spot removed from my Rt temple area. Physician removed it - no further followup.

Benlysta

Benlysta

Had anyone else taken these two IV meds together and what happened when you did?

A MyLupusTeam Member

I developed T Cell lymphoma while taking both, unfortunately it went undiagnosed for over a year. I always wondered if that combination had something to do with having lymphoma as it's a potential… read more

I Had A Positive ANA Test And Diagnosed Lupus First Meeting And Second Meeting Negative ANA Blood Test?

I Had A Positive ANA Test And Diagnosed Lupus First Meeting And Second Meeting Negative ANA Blood Test?

My rheumatologist told me I should see a psychiatrist because my symptoms were probably in my head. I am totally confused. I did have a negative ANA test the second time I had blood work done when before it was positive. Any ideas?

A MyLupusTeam Member

I've been on Rayod for 4 years and my insurance/Dr recently change so I got switched to Prednisone. I'm being weened off of it. Is that a good thing?