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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Pamelor"

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Benlysta

Benlysta

Had anyone else taken these two IV meds together and what happened when you did?

A MyLupusTeam Member said:

I developed T Cell lymphoma while taking both, unfortunately it went undiagnosed for over a year. I always wondered if that combination had something to do with having lymphoma as it's a potential… read more

posted over 4 years ago

60 Year Old Women Recently Diagnosed

60 Year Old Women Recently Diagnosed

Recently diagnosed 8 months ago. Mild disease( no organ involvement) although it doesn't feel like it. I can't seem to find any info on women being diagnosed later in life. Had similar symptoms back in 2009, but received no answers. I figured it was just menopause. Have suffered with chronic kidney stones for 45 years, so watching the kidneys closely, kidney function test are not normal but pretty stable. Just looking for info from any older women or men that gir diagnosed later in life.

read more

A MyLupusTeam Member said:

My mom was diagnosed at seventy.I was in my early thirties.The only reason they found it was because they originally diagnosed her with arthritis.However both her hands and feet turning purple which… read more

posted over 3 years ago

Skin Cancer

Skin Cancer

Just found out the small bump on my face that was removed is squamous cell carcinoma and my dermatologist is sending me to surgeon. Has anyone else had this? I’ve read that there may be a connection with skin cancer and lupus. Just curious to see if anyone else has had it.

A MyLupusTeam Member said:

I was just told I have Malignant Melanoma, I have been on Benlysta for 11 months. I was on here to see if anyone else is finding it

posted almost 2 years ago

Does Any One Suffer With Pain Between There Neck And Shoulder

Does Any One Suffer With Pain Between There Neck And Shoulder

I have like so much pain I the back of my neck and shoulder and it gets very stiff at times its indescribable its tight

A MyLupusTeam Member said:

Yes all the tine

posted about 6 years ago

Does Anyone Have Nodules Under The Skin That Hurt At Times?

Does Anyone Have Nodules Under The Skin That Hurt At Times?

I have nodules under my skin mostly on my arms and thighs but I do have some on my shoulders and chest some are small which can be lipomas but some are bigger and they hurt bad especially when touched. I noticed when I am in a flare they are bigger and hurt even more.

A MyLupusTeam Member said:

I had a couple more biopsies and they turned out to be angiolipomas. I do have alot more since I asked this question. There is something called Dercums Disease that basically have the same symptoms… read more

posted about 3 years ago

Does Any One Suffer With Pain Between There Neck And Shoulder

Does Any One Suffer With Pain Between There Neck And Shoulder

I have like so much pain I the back of my neck and shoulder and it gets very stiff at times its indescribable its tight

A MyLupusTeam Member said:

yes! extremely bad..the only thing that loosens it up is heat

posted almost 6 years ago

How Do I Prepare To Be A Bridesmaid With Lupus?

How Do I Prepare To Be A Bridesmaid With Lupus?

My brother's fiance asked me to a bridesmaid, which I'm super excited about because I've never been in a wedding! Since she asked me, though, my mind has been racing with things that may stand in the way of my enjoyment of the experience. The bride knows I have lupus but doesn't understand it at all; at the same time, I don't want to rock the boat because she and I have had a dust-up or two recently as I've tried to navigate the combination of pre-existing depression and lupus mood swings.

So… read more

A MyLupusTeam Member said:

And have a great time and enjoy it! Lots of really good advice from many supporters. It might be nice if you could arrange a place to rest for a bit quietly and privately if needed. My friends are… read more

posted over 4 years ago

Do You Think It Is Harder To Accept A Diagnosis If You Are On The Mild End Of The Lupus Spectrum?

Do You Think It Is Harder To Accept A Diagnosis If You Are On The Mild End Of The Lupus Spectrum?

I was diagnosed in April 2017 and I think it has taken me almost 2 years to come to some type of acceptance. I don't have any organ involvement (thankfully). I've never had any hospital stays. You might say that the symptoms have been creeping up very slowly enough that I never really noticed them. Anyhow, I was exercising today and trying to keep up while being aware that the energy levels just weren't there today. I finally just started crying while trying to do the ab work. I'm not a… read more

A MyLupusTeam Member said:

Boy do I understand! My only symptoms have been fatigue and shortness of breath and I figured I could handle it. Wrong! Over a year later....same symptoms. After reading some of these messages I feel… read more

posted 2 months ago

Is There Anyone Here Who Has Sharp Unexplained Pains In Different Areas Of The Body.

Is There Anyone Here Who Has Sharp Unexplained Pains In Different Areas Of The Body.

Pains that might only last for a few seconds and then go away, just to happen again a few minutes or even hours later? I have been having these from time to time over the last month and none of my doctors can really explain it to me. They just kind of shrug their shoulders and say, "Lots of weird things happen to people with Lupus, we just can't explain it."

A MyLupusTeam Member said:

I have pain running though my right hand can't bend it war can I do

posted almost 4 years ago

Morning Fatigue

Morning Fatigue

Any tips for moving faster in the morning? I am a zombie for about the first 2 hours and sometimes more regardless of how much sleep I get. Would really like to overcome this as mornings are brutal! Use caffeine but not much energy to do anything else. Used to get up and run every morning and now I can't move off the couch!

A MyLupusTeam Member said:

My first few hours are hell also. But I started to have my coffee and meds at the computer as I check out my emails and the support group, what I found was I was so wrapped up into answer mail and… read more

posted over 4 years ago