Hi all. Today I had my 1st appointment with the rheumy. She thinks I have either Lupus or Undifferentiated Connective Tissue Disease. She had me start Plaquenil and I took it for the 1st time tonight. Within an hour my face started tingling, then my extremities, then my entire body had intense itching. I took zyrtec and benadryl and put coconut oil on my skin. It has helped but Im still itching some. Im going to call rheumy in morning and ask for advice but wanted others thoughts here from… read more

From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).

The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat all… read more

I used to smoke a few years ago, but stopped. I was just recently able to get into a rheumatologist and was diagnosed with lupus and put on a few medications. The main one being Plaquenil
I smoked last night with a friend, about 30 minutes after taking my pill
I was wondering if anyone has had any experiences with them interacting with each other? Like when you smoke after taking your dose, does it make you trip or get too high, etc. I haven’t really been able to find anything about it on… read more

Are these 2 meds actually the same? My Dr had me on hydroxychloroquin (small round tablets) and now after getting a refill, I have a pill that's bone shape and says plaquenil. With the new refill I feel like I'm going to pass out from tiredness. Didn't feel like that with the hydroxychloroquin itself. Both bottles say hydroxychloroquin though.

They just started me on Methotrexate injections, I do them once a week. They took me off Plaquenil as I didn’t feel like it was working after being on it for 4 months. I’m also on Cellcept 2000mg and prednisone 30mg (they want to lower this now down to 5mg a day if we can)
Has methotrexate worked well for others? Any advice? Also my Dr told me to take 1000mg of folic acid when I do the shot of Methotrexate but I have read conflicting reports.

Also I’ve noticed though the last few days… read more

I’m not sure if this is where I should ask this but does anyone else experience sores on their scalp? I’m newly diagnosed and still trying to piece together this weird puzzle. I don’t know if it’s the lupus or the meds (Plaquenil & prednisone)

Mine get more blurry the longer I read or watch TV.

So my new rheumy plans to start me on this in August, do u all have any bad side affects from it or is there some things i should watch out for or be prepared for?