Hi all. Today I had my 1st appointment with the rheumy. She thinks I have either Lupus or Undifferentiated Connective Tissue Disease. She had me start Plaquenil and I took it for the 1st time tonight. Within an hour my face started tingling, then my extremities, then my entire body had intense itching. I took zyrtec and benadryl and put coconut oil on my skin. It has helped but Im still itching some. Im going to call rheumy in morning and ask for advice but wanted others thoughts here from… read more
I have been on Hydroxychloroquine since April and just started with the itching in July. I also have a SCS implanted, and today I decided to turn it off and see if it would stop me from itching and so… read more
I’m not sure if this is where I should ask this but does anyone else experience sores on their scalp? I’m newly diagnosed and still trying to piece together this weird puzzle. I don’t know if it’s the lupus or the meds (Plaquenil & prednisone)
I've been dealing with a bad scalp outbreak for the past year. I found a dermatologist who specializes in autoimmune disorders. I use topical tacrolimus. It helps but is thick like vaseline, but its… read more
@A MyLupusTeam Member, all are natural supplements, including CN-SP, except for TP+SCs, which are your own stem cells
For prescription meds I am on Diltalizem for blood pressure, insulin for T1D, and… read more
Does anyone experience hair loss, dry mouth, and get anxious after taking Plaquenil. I'm suffering from these symptoms and don't know how to solve them. Can you help me?
I'm here
dr just called and said test shows connective tissue disease. Does anyone know any facts on this. Dr said we would talk about it next visit but I dont want to wait. She wants to prescribe a med that has a small % chance it can hurt vision. I just need some informatiom.
Thank You
What are connective tissue diseases?
A connective tissue disease is any disease that affects the parts of the body that connect the structures of the body together.
Connective tissues are made up of… read more
From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).
The Plaquenil really upsets my stomach. I get acid reflux and it triggers my GERD and I wake up with a sore throat all… read more
I no longer take Plaquenil. I’m on Gingraf 100mg capsules. I had a renal transplant last year.
Has Anyone had Immediate eyesight changes (blurred vision, dark sight, problems re-focusing after opening theyre eyes, etc) after starting back on plaquenil? Please let me know ASAP.
xoxo
I’m sorry to hear that:/ how long were you on it before it ruined your vision?
Does everyone plaquenil or have you opted out of taking it? I was taking it. My other doctor stopped it now my new dr want me to restart. Thoughts or suggestions will be helpful.
Became
Hello Everyone! I would like to ask a question about Quinacrine. I learnt that it can be used instead of Plaquenil if people develop side effects of the last one or too sensitive to it. I have a tough ride with Plaquenil. My eye tests are fine but I see the difference with my eyes when I take it (floaters, color distortion). I was about to discuss Quinacrine with my doctor. Do you have any experience with this med? Please, share.
I take Quinacrine with Cholorquine (Plaqunil doesn't work in me). As I understand it, the Quinacrine is a 'distractor' for the Antibodies - they attack the Qunacrine instead of my tissues. I've not… read more
Are these 2 meds actually the same? My Dr had me on hydroxychloroquin (small round tablets) and now after getting a refill, I have a pill that's bone shape and says plaquenil. With the new refill I feel like I'm going to pass out from tiredness. Didn't feel like that with the hydroxychloroquin itself. Both bottles say hydroxychloroquin though.
I just recently was told by my retinal specialist to stop taking hydroxychloriquine. Dr. said he now sees retinal toxicity. The first 6 years, all of my tests were fine. Then on year 7, I now have… read more