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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Relafen"

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Muscle Spasms

Muscle Spasms

Hi,

I am wondering do anyone else suffer with muscle spasms? Not sure if is Lupus related or not
Thanks
Tammy

A MyLupusTeam Member

I was having them everywhere in my body about 10 months ago. They seemed to calm down. But these back ones scare the life out of me. It’s like my body goes into an electric shock.

Skin Pain

Skin Pain

Does anyone else experience skin pain? I guess the best way to explain it is, when I’m having a flare, which I am right now, I have radiating pain in both my femur bones, hips and tailbone, in all the muscles below my waist to my feet, but also my skin. It hurts to be touched or to have clothes touching my skin. Like I’m sunburnt or bruised and someone is pressing down on the bruise. It might sound confusing and it’s hard to explain. Anyone else?

A MyLupusTeam Member

Hi....it's usually related to the fibromyalgia which I believe just comes along with lupus
I'm afraid I have no answers but there is often a bizarre itching that feels under the skin that u can't… read more

Back Pain When You Go With Bowel Movements?

Back Pain When You Go With Bowel Movements?

Most of my issues are gastrointestinal, but i notice if I go even just a day without a bowel movement I have severe lower back pain. Anyone relate?

A MyLupusTeam Member

Yes I'm going to have xrays done next week.

Alkaline Phosphatase

Alkaline Phosphatase

My alkaline phosp always runs low on my bloods, doctors don’t give me reasons. I saw on a support group it could be related to lupus. Any one know what causes it and what it could be related to, and how do you correct it. Tyvm

A MyLupusTeam Member

Wow, you can go 2 years without seeing your rheumatologist? How do you get your meds filled? Does he approve it since you haven’t seen him in 2 years

Sensitive Skin

Sensitive Skin

When I simply touch my arm ever so gently, it is so sensitive to touch, sometimes my leg, even my face, unless this is prednisone or lupus related? What could it be. Endocrinologist appt tomorrow, rheumatologist appt next week, can’t wait, hopefully they can shed light on this for me. Oh, and did I say I am up with the coffee perking. Just would love to sleep until 6am once, just once. Have a great day everyone

A MyLupusTeam Member

I go to see a neurologist next week, we will see. My skin is extremely thin and sensitive due to the prednisone. Going to start another taper attempt on Sunday since my rheumatologist told me I need… read more

Is Lupus Related To Fall

Is Lupus Related To Fall

I have been falling lot was. Wonder ing if the to wear related

A MyLupusTeam Member

Thank u for a answer

I Am Getting Severe Arm Muscle Spasms/pain. Any Suggestions For Relieve Of Pain.

I Am Getting Severe Arm Muscle Spasms/pain. Any Suggestions For Relieve Of Pain.

I am on muscle relaxants and relafen for muscle pains but not receiving much relief

A MyLupusTeam Member

Thanks so much. Stay well🙏❤️

Can You Please Give Me Your Input On The Benlysta Shots At Home?

Can You Please Give Me Your Input On The Benlysta Shots At Home?

I was on the infusion but lost my insurance and after a month I got approved for the injection at home. I’m trying to figure out if that I’m experiencing is lupus related or injection related. Thanks for for help and comments

A MyLupusTeam Member

Sometimes it burns going in I never inject in the leg they say it’s worse. Been on it for 9 months no joint pain still tired but that maybe other issues. I do feel like it works. I’m a total ninny and… read more

Eyes

Eyes

Does anybody else get sudden headaches as soon as they open there eyes in the morning? And ive noticed different things like the sudden headaches in morning. Intense pain behind one of my eyes and then last night i was driving home and all the taillights and headlights had them beams or starburts? I guess is what they call em. Anyway i got home and the tv light was still doing it then i take my glasses off and it Stops. And then this morning i have my glasses on and dnt see the beams of light… read more

A MyLupusTeam Member

AlTeranella how are you feeling today?
I'm going to mention vasuitis to my doctor and see what she thinks.

Lupus And Hydrochloroquine?

Lupus And Hydrochloroquine?

Hello family anyone stopping or not using hydro chloroquine for lupus? What do you take if you can't take hydro chloroquine for lupus? How you handle the lupus side? I might having 1st stage hypertension now my bp is high for last three days and I will see my PCP next two for echocardiogram and hopefully nothing serious. What do you take for lupus if your having reaction to hydro chloroquine? I am not really sure why I am having hypertension and not sure if due to my hydro chloroquine I have… read more

A MyLupusTeam Member

Hi
I couldn't take it either. I tried four lots of medication. Methotrexate caused me pyelonephritis and I was in hospital with it. Hydrochloride made my hair fall out etc
The only drug I'm ok with… read more