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Top 10 Search Results for "Saphnelo"

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Infusions

Infusions

I have been sick with a bad flare for several months. My rheumatologist is putting me on Saphnelo infusions. It is pretty new. Can anyone give me insight or information on this I would really appreciate it . Thanks in advanced.. God bless.

A MyLupusTeam Member

Are you having ongoing organ injury with your flare or mainly pain and fatigue?

Anyone Taking Saphnelo?

Anyone Taking Saphnelo?

If you are taking Saphnelo:
Did you have a reaction/side effects?
Has it been effective? Reduce your Lupus symptoms?
Had you taken Benlysta before taking Saphnelo?
Thank you.
Aileen

A MyLupusTeam Member

Hi there
I took Benlysta infusions for almost three years and it worked wonderfully for me until the last 8 months, where it became totally ineffective. All the pain, stiffness returned so I was… read more

My Rheumatologist Is Considering Replacing My Benlysta With Saphnelo And My Cellcept With Voclosporin. Anyone Take These With Results?

My Rheumatologist Is Considering Replacing My Benlysta With Saphnelo And My Cellcept With Voclosporin. Anyone Take These With Results?

A MyLupusTeam Member

@A MyLupusTeam Member
Voclosporin is a pill. Common name is Lupkynis. Was the Benlysta helping you? I felt like it was helping me then it slowly started to lose its effectiveness. I really don't think… read more

Has Anyone Started On Saphnelo?

Has Anyone Started On Saphnelo?

I am starting on Saphnelo infusions on Nov. 5th.

A MyLupusTeam Member

🙏🏼

What Other Medications Work For Lupus Besides Hydroxychloroquine? When Do Steroids Need To Be Added? Thanks!

What Other Medications Work For Lupus Besides Hydroxychloroquine? When Do Steroids Need To Be Added? Thanks!

A MyLupusTeam Member

Plaquenil and steroids have been used, I think, since the 1960’s or even earlier. Very recently to new medications for Lupus have hit the scene - Benelysta and Saphnelo. Benelysta comes in injection… read more

Is Anybody Else Having Issues With Their Kidneys And Protein And Creatinine?

Is Anybody Else Having Issues With Their Kidneys And Protein And Creatinine?

I have been diagnosed with lupus and a month ago a 24 hour urine protein and creatinine clearance came out abnormally with a protein of almost 300 but a low creatinine number. My nephrologist wanted to do a biopsy but my rheumatologist convinced her to wait a month and redo the test which I just got back the results of. The protein is still abnormal but has lowered somewhat probably because of a low-dose of prednisone I’m on and I’m awaiting an infusion in mid June to start a new treatment… read more

A MyLupusTeam Member

@A MyLupusTeam Member How did it go? Are you having many side effects?

Have A Question About Infusion Treatments.

Have A Question About Infusion Treatments.

Can anyone give me advise on getting infusion treatment? My doctor wants me to start and I am very nervous.

A MyLupusTeam Member

Saphnelo is the newest medication approved-just last year in fact- for us Lupies! It is meant, like Benlysta, to be used in conjunction with other Lupus therapies
I personally have not dealt with… read more

Benlysta Vs Saphnelo

Benlysta Vs Saphnelo

Has anyone taken both of these drugs and and can share their experience with effectiveness, side affects, pros and cons of each one? I am currently on Benlysta and it worked well for me for 3 years but in the last month I have been having constant flares. My Dr wants to switch me to Saphnelo. I am scared and unsure. I would like to know more about Saphnilo as compared to Benlysta for those who have had experience with both.

A MyLupusTeam Member

Hopeful 81. Thanks for the info. No way I could handle that expense. I have no c,o-pay at all. I’ve tried all of GoodRx and the other 1/2 p Pay stores..I hope you do well. I appreciate your info… read more

Which Is Safer For Long Term Use, Methotrexate Or Benlysta?

Which Is Safer For Long Term Use, Methotrexate Or Benlysta?

I’m concerned about serious long term ramifications from use of either of these medications, but right now they are a necessary evil. I’m not looking for common AE’s, I’m looking for serious AE’s associated with long term use (PML, malignancies, serious infections, liver & renal impairment, etc). Thank you!

A MyLupusTeam Member

Thank you for sharing your experience 🥰