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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "improving muscle recovery in lupus patients"

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Pregnancy

Pregnancy

Just curious about lupus and pregnancy, how have your pregnancies gone? And have any of you's fallen pregnant on your medication? Not pregnant just has always been something I've been worried about.

A MyLupusTeam Member

I had mc bc I have a copper iud which my dr advise me to get if I wasnt trying to get pregnant bt it failed n I did n now I still have the copper iud n Im pretty sure im pregnant

Pregnant

Pregnant

Can people with lupus get pregnant?

A MyLupusTeam Member

YES!!!! OMG YES!!!! Although it may be difficult for some, depending on how Lupus is affecting their body. I was told I probably wouldnt conceive, per the weight, and the Lupus factor, after I was… read more

Lupus Nephritis And Pregnancy?

Lupus Nephritis And Pregnancy?

What are other people's experiences on getting pregnant/being pregnant with lupus nephritis? I would like to be off all kidney meds completely. I will still take plaquenil for flares, but I don't feel comfortable taking Imuran. Thoughts??

A MyLupusTeam Member

Hi there! I do not have Lupus Nephritis, so I am unable to speak to that portion. I became pregnant while having Lupus SLE. I was already taking a moderate dose of plaquenil, but after my 6th month, I… read more

Has Anyone With SLE And Lupus Nephritis Who Was Treated With Cytoxan Been Able To Have Children?

Has Anyone With SLE And Lupus Nephritis Who Was Treated With Cytoxan Been Able To Have Children?

I would love some "real world" advice form those who have been through this as opposed to physicians telling me childbirth "isn't a good idea" with no evidence to back it up even though I have been in remission for over 3 years and and am doing great clinically with GFR of 70, Creatinine of 0.7- 1.0, ANA of 10 and dsDNA of 1:40- 1:160. Thank you in advance!

A MyLupusTeam Member

Im so sorry you even have to ponder that. But after reading these responses, my take away is they seem to prove out something I told my own daughter…
That whatever decision you make will be the right… read more

Anyone Participating In Drug Study For Lupus Meds?

Anyone Participating In Drug Study For Lupus Meds?

I am currently in a phase 2 double blind study for Epratuzumabx a cousin drug to Benlysta. I actually enjoy participating except for the commute but I am feeling beneficial results.

Looking to compare notes south others testing new medications. Thanks <3

A MyLupusTeam Member

I have been taking Benlysta injections but I do not participate in trials without discussing it with my dr first. Benlysta has been great for me

Can Someone Shed Light On How Pregnancy And Delivery Effects SLE?

Can Someone Shed Light On How Pregnancy And Delivery Effects SLE?

Is it best to have a c-section or normal delivery with SLE?

A MyLupusTeam Member

I was 36 when I had my daughter. I was a high risk. I had a c-sect because the doctor didnt want trauma
to face my kidney. She was taken 3 days before her due date. I was diagnosed with Lupus in… read more

Are There Any Men With Lupus

Are There Any Men With Lupus

Ive heard men also get lupus but i want to know are they on this website and how do they cope with it .im curious to know if it affects them the same way it does the women.

A MyLupusTeam Member

Me

Has Anyone Taken Imuran While Pregnant

Has Anyone Taken Imuran While Pregnant

A MyLupusTeam Member

My daughter has lupus too, she's 28 and is almost 8 months pregnant. Very high risk with her lupus, she's on imuran and lovonox for blood clots. It's been stressful but we are almost there. 🙏