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Lupus and Race: What Matters to MyLupusTeam Members

Lupus and Race: What Matters to MyLupusTeam Members

Lupus is a disease that affects African-American women at a much higher rate than any other demographic. In addition, some types and symptoms of lupus affect African-Americans differently than other people with lupus. Members of MyLupusTeam...
Posted 06/15/2017
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Finding a New Normal: Living With Lupus

Finding a New Normal: Living With Lupus

Receiving a diagnosis of lupus can inspire both relief and dread. It can be a relief to have a name for the misery that's become part of life. On the other hand, a diagnosis of lupus can be upsetting because it labels us with a problem for which...
Posted 06/01/2017
Infographic lupus treatments v07 %281%29

4 Things People With Lupus Want To See In New Treatments (Infographic)

4 Things People With Lupus Want To See In New Treatments (Infographic)

We surveyed MyLupusTeam members about what they hope to see in future lupus treatments. Answers fell largely into four categories. Members hope new treatments will reduce pain, have fewer side effects, decrease fatigue and sleeplessness, and...
Posted 12/04/2016
Infographic lupus skinconditions

Lupus and Skin Symptoms (Infographic)

Lupus and Skin Symptoms (Infographic)

Life with lupus can mean a whole lot of symptoms, including skin symptoms. We asked MyLupusTeam.com members to tell us about their skin symptoms. Eight in 10 members report experiencing a rash at some point. 62% have experienced the "butterfly"...
Posted 11/14/2016
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Your Answers: The Worst Lupus Advice (Infographic)

Your Answers: The Worst Lupus Advice (Infographic)

We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and hundreds of you took the time to respond.What did we learn? From the unconcerned ("It's not so bad") to the plain unhelpful...
Posted 11/13/2016
Infographic lupus 2

The Honest Truth About Controlling Lupus, Part 2: Two Major Obstacles

The Honest Truth About Controlling Lupus, Part 2: Two Major Obstacles

Earlier we shared four of the most common lupus flare triggers discussed by members of MyLupusTeam. Now we are sharing the two most talked about obstacles to controlling lupus: drug efficacy and side effects, and changing symptoms.At MyLupusTeam,...
Posted 10/14/2016
Infographic lupus3

The Honest Truth About Controlling Lupus, Part 1: Four Common Triggers of Flares

The Honest Truth About Controlling Lupus, Part 1: Four Common Triggers of Flares

MyLupusTeam launched in August 2014 with just 10 members in the San Francisco Bay Area. Today, MyLupusTeam has grown to more than 127,000 members, making it the largest social network in the world for those living with lupus.We believe that when...
Posted 10/07/2016
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Lupus: What People Don't See (Infographic)

Lupus: What People Don't See (Infographic)

Below the surface, living with lupus can mean days spent in bed, missed appointments, and alternate days when we seem "fine." There's so much more to lupus than meets the eye. We know that lupus comes with hundreds of possible combinations of...
Posted 10/03/2016
Infographic lupus symptoms

Do You Know the Top 5 Lupus Symptoms?

Do You Know the Top 5 Lupus Symptoms?

It’s been two years since we launched MyLupusTeam.com, the social network and online support group for people living with lupus. Since then we’ve gained more than 65,000 members and shared 600,000 conversations about living with lupus!Throughout...
Posted 09/21/2016
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