00:00:00:02 - 00:00:32:02
Seda
Hello. My name is Seda Bryant and I live with systemic lupus erythematosus, stage 4 lupus nephritis, antiphospholipid syndrome, and Raynaud's Disease. My lupus story started in 2011 where after years of medical problems and misdiagnosis, I was given only three weeks until total organ failure. Lupus really dropped a bomb on my life. I experienced a lengthy journey to remission, and it included two rounds of chemotherapy, dialysis, 26+ hospital admissions.

00:00:32:07 - 00:00:57:00
Seda
Despite the fact that lupus predominantly affects people of color, I have had several instances where I felt like my care was affected because of my race, so the advice that I give people is, #1: If your medical group offers an app, I would use that to message your doctor. Writing things down strips away a lot of the layers, and it literally becomes a black and white issue of: Did they address your needs or not?”

00:00:57:07 - 00:01:20:07
Seda
It also creates a time-stamped paper trail in case you need to file a grievance or take other actions. Secondly, I would heavily lean on friends and family or your support system. Take them with you to doctors’ appointments so you have witnesses to what's going on and especially, especially, especially if you have to go into the hospital. 3 is get a second or third opinion.

00:01:20:07 - 00:01:36:04
Seda
If you feel like your concerns are being dismissed or you're being discriminated against. You can live a normal, beautiful, except normal life with lupus. And don't you dare settle for anything less.