For many people, lupus affects the skin on the top of the head, leading to itchy rashes, skin lesions, or alopecia (hair loss). While scalp pain isn’t usually listed as a typical lupus symptom, several members of MyLupusTeam have shared stories about having a painful or tender scalp.

“I have had scalp sores since I was a kid,” one member said. “They are red open sores with some scaly dry skin surrounding them. They eventually scab over, but the scabs get knocked off just brushing and washing my hair or running my fingers through my hair.”

Another shared, “I get sores on my head. They are little bumps. I always thought I was getting bitten by insects. I never thought of it as a part of having lupus.”

Here’s what you should know about the possible connection between scalp pain and lupus, along with treatment options to consider.

Does Lupus Cause Scalp Pain?

Systemic lupus erythematosus (SLE), the most common type of lupus, and cutaneous lupus erythematosus (CLE) can both affect the skin. CLE is a form of lupus that happens when your immune system attacks the skin, causing sores, lesions, or rashes. A subtype of CLE called discoid lupus erythematosus, or discoid lupus, often causes rashes or scaly patches on the scalp and face.

Pain isn’t considered a typical symptom of discoid lupus lesions. Still, some MyLupusTeam members report scalp pain and wonder if lupus is the cause. One member said, “My scalp sores are tender to touch. During one particularly bad episode, they caused glands that I didn’t even know were there to swell near the base of my skull. I wanted to find out if they are indeed lupus related.”

Other Causes of Scalp Pain

Your scalp pain may not be directly related to lupus. Other possible causes of scalp pain include:

• Scalp acne — Caused by clogged pores
• Occipital neuralgia — A nervous system condition
• Skin conditions such as eczema

Certain hairstyles, such as tight braids, ponytails, or heavy hair extensions, can sometimes cause scalp tension and pain. Wearing your hair in looser styles can help protect your scalp and may also reduce hair loss caused by lupus.

3 Ways To Treat Scalp Pain

If you’re worried that your scalp pain is related to lupus, talk to your rheumatologist. They may suggest lifestyle changes — such as covering your scalp when you leave the house — or medications to relieve pain. It’s also helpful to ask if your current lupus medications can help manage your scalp symptoms.

1. Protect Your Scalp From the Sun

Many people with lupus experience photosensitivity, or sensitivity to ultraviolet light. Sun exposure may trigger lupus flare-ups and worsen scalp symptoms. Even with a full head of hair, your scalp can be vulnerable to sun exposure, especially along the hairline, part, or any areas of thinning or balding.

Wearing a wide-brimmed hat and applying sunscreen along exposed areas to protect your head from sun exposure can help prevent painful inflammation on the scalp, as well as other SLE symptoms like fatigue or joint pain. As one MyLupusTeam member said, “The sun is a real problem if you have lupus sores on your scalp. I wear a hat when I’m outside.”

2. Discuss Topical Treatments With Your Doctor

Members of MyLupusTeam report using topical treatments on their scalp to help ease swelling or inflammation caused by lupus. Many of these treatments are used for other conditions that affect the skin, like eczema or psoriasis. Ask your doctor if they’re right for you.

Some MyLupusTeam members report being prescribed topical corticosteroids that are usually used for conditions like psoriasis and eczema. “My doctor gave me a clobetasol 0.05 percent solution to apply to my scale twice daily. It seems to work but leaves your hair looking a mess,” wrote a member of MyLupusTeam.

If you’re wondering whether topical medications could help your scalp pain, talk with your healthcare provider. Make sure to discuss all your medications and health conditions with your doctor.

3. Ask Your Doctor About Pain Relief Medications

Your rheumatologist or healthcare provider may recommend nonsteroidal anti-inflammatory drugs (NSAIDs), like ibuprofen, for temporary pain relief. However, NSAIDs are generally not advised for people with kidney problems, such as lupus nephritis (a complication of lupus). For occasional use, acetaminophen is often considered a safer alternative for people with kidney disease.

Always discuss any new treatment option, whether prescription or over the counter (OTC), with your healthcare provider. Like prescription drugs, OTC products can have side effects or interfere with lupus nephritis or other health issues. Working closely with your doctor can help you find the safest, most effective treatment plan to manage scalp pain and other lupus symptoms.

Talk With Others Who Understand

On MyLupusTeam, people share their experiences with lupus, get advice, and find support from others who understand.

Have you experienced scalp pain with lupus? Let others know in the comments below.