Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
San Antonio, TX
October 4, 2015
 · 
Be the first to react
A MyLupusTeam Member

I had those tiny red, pussy sores for years! I just had a couple pop out, and they thought it was shingles. Then for years the pain, which was called Post Heroetic Neuralgia, cause they figured it was inside shingles? I presently have several odd mouth sores, painful indeed. I've NEVER been told all this is Lupus, UNTIL yesterday, yes just yesterday. Now I've lived with so many symptoms and dealt with this for probably 40 years.

October 6, 2015
A MyLupusTeam Member

I have gotten sores and blisters. Originally they thought it was my getting shingles for a second time. Now my doctors believe it was onset Lupus flare. I have had them a few times. Feel better!

October 5, 2015
A MyLupusTeam Member

I have had both...since I am in the running now for many years, it seems that the Butterfly Rash, blistets, sores and such was at the very beginning, discovery stage of the desease...

October 4, 2015
A MyLupusTeam Member

Hope you are doing well tonight. God bless you

November 2, 2015
A MyLupusTeam Member

Tomorrow I see the Rheumatologist for the first time. I've heard the term "infusions" used as to a treatment, so I'm interested in what this Dr advises. I've got no clue what will happen, if anything, but I really hope he starts me on something. I'll keep u informed. Also, We'd I see a Diabetic instructor, cause I'm now labeled Diabetic, with an A1C of 6.0, I thought I was ok, but they told me its Insulin resistance. That, is one thing I need to get clear in my head. I'm quite apprehensive tonight, cause in the past, I've gotten no where!

November 2, 2015

Related Questions

View All
A MyLupusTeam Member asked a question 💭
Atlanta, GA

A MyLupusTeam Member asked a question 💭
Stonewall, OK

A MyLupusTeam Member asked a question 💭
Camp Verde, AZ