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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Waretown, NJ
January 7, 2016
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A MyLupusTeam Member

I tried benlysta during the pandemic for a year. I felt like I gained weight but it was the pandemic. Anyhoo I stopped it after a year because it didn't help. I just started Saphnelo and its sometimey. Every other infusion works for my arthritis pain.

September 26, 2023
A MyLupusTeam Member

I did try benlysta for 6 months no improvement in fact was making me feel worse , I try to hang in there to see if I’d feel better but no way so I stopped

July 3, 2023
A MyLupusTeam Member

After 8 months of giving myself the Benlysta injections didn't see any improvement. It had gotten to the point to where I dreaded giving myself the injections and had started to have panic attacks which didn't help any.
Just started the Saphnelo infusions last week. Already see a difference.

May 26, 2023
A MyLupusTeam Member

Benlysta made me feel worse and didn’t help me one bit . I tried it for 6 months but no improvement.

May 3, 2023
A MyLupusTeam Member

It didn't help me. You may want to try it cause it does help a lot of people. I'm on rituximab infusions and it's working great for me. Read my story and I talk about it.

March 2, 2023

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